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Adapting Communication With Autistic Service Users: Co-Produced Adaptations for Medical Services, Employers, and the Third Sector, 2018
Creator
Maras, K, University of Bath
Norris, J, University of Bristol
Lei, J, University of Oxford
Study number / PID
857294 (UKDA)
10.5255/UKDA-SN-857294 (DOI)
Data access
Open
Series
Not available
Abstract
Autistic people have a greater need to access services (e.g., health and social care, welfare, justice, etc), yet face significant disadvantages when doing so, often due to poor two-way communication between service providers and service users. This study aimed to co-develop practical, evidence-based adaptations to facilitate communication between service providers and autistic people. Based on a review of current research evidence, an initial list of adaptations was developed, across four categories: 1) adapting the environment to reduce sensory stressors, 2) facilitating diagnosis disclosure, 3) adapting direct communication, and 4) modifying visual or written information. Second, we co-delivered (with autistic people) a workshop for service providers (N = 41), tailoring these adaptations to their sectors. Finally, a survey sample of autistic people and the autism community evaluated these adaptations and added their own suggestions (N = 99). Workshop attendees’ autism knowledge, and confidence in communicating with autistic people significantly improved post-workshop, and they went on to implement the evidence-based adaptations. The autism community endorsed the adaptations, and suggested some additional adaptations that they would like. Findings demonstrate that providing evidence-based adaptations in a workshop co-delivered with autistic people improves service provider autism knowledge and confidence in communicating with autistic people, and encourages them to offer adaptations.Autism spectrum disorder (ASD) is diagnosed in around 1% of the population and presents a number of challenges to the day-to-day lives of these individuals as well as their families and support services. This project will provide an evidence base and guide improvements to existing methods used by professional groups to support those with ASD. This will take place in three important information-gathering contexts in which they are currently at a disadvantage. First, only around half...
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
23/10/2018 - 06/11/2018
Country
United Kingdom
Time dimension
Not available
Analysis unit
Individual
Universe
Not available
Sampling procedure
Not available
Kind of data
Numeric
Text
Data collection mode
The workshop was attended by 41 individuals from a range of sectors, including medical (e.g., surgical, occupational health, orthodontics), higher education, employment support (e.g., the Department for Work and Pensions), as well as from Non-Governmental Organisations (NGOs), third, and private sectors (Medical N = 18, Higher Education N = 9, Employment/employment support = 5, Social work/care N = 3, NGO/Third Sector/Private sector N = 6). In depth information about the methodology is available in the documentation.
Funding information
Grant number
ES/N001095/1
Access
Publisher
UK Data Service
Publication year
2024
Terms of data access
The Data Collection is available to any user without the requirement for registration for download/access.