Summary information

Study title

Living with AIDS : The Experience of Homosexual Men with HIV Infection Or AIDS, 1988-1989

Creator

McCann, K., Institute for Social Studies in Medical Care

Simms, M., Institute for Social Studies in Medical Care

Wadsworth, E., Institute for Social Studies in Medical Care

Study number / PID

2987 (UKDA)

10.5255/UKDA-SN-2987-1 (DOI)

Data access

Restricted

Series

Not available

Abstract

Abstract copyright UK Data Service and data collection copyright owner.

The aims and objectives of this survey were to:
Describe the experience of and attitudes towards the care of people with AIDS or related conditions; describe the social context in which requirements of health care are negotiated; look at the continuity of care between hospital and community; describe balance of care between professional and lay carers; describe views and perceptions of care of patients and formal and informal carers; examine process of obtaining care; examine balance of care between hospital and community; look at social consequences of care received.
Main Topics:

Methodological issues in research; care of pwas; needs for health and social care of pwas; receiving a positive HIV antibody test; use of general practitioner services; care from the home support team; role of informal carers; role of the voluntary sector; symptoms of AIDS and their relief.

Health care services and policies

ADVICEAGEAIDS (DISEASE)ALCOHOL USEATTITUDESBUILDING MAINTENANCECARE IN THE COMMUNITYCARE OF DEPENDANTSCLEANINGCLINICAL TESTS AND MEASUREMENTSCOMPLEMENTARY THERAPIESCOOKING

Data collection period

01/01/1988 - 01/01/1990

Country

England

Time dimension

Cross-sectional (one-time) study

Analysis unit

Individuals

Subnational

AIDS or HIV sufferers

Carers

Homosexuals

Patients

Universe

All homosexual (or bisexual) men attending the study hospital with AIDS or HIV infection on 1st October 1988, and any others who attended between then and June 1989 (pwas); Their informal carers and their key formal carers.

Sampling procedure

No sampling (total universe)

Kind of data

Not available

Data collection mode

Face-to-face interview

Identification of pwas through interviews with professionals based at two hospitals and two wards of the hospital and through home support team (HST).<br>Questionnaire interviews with pwas, and follow-up 6-9 months later.<br>Questionnaire interviews with all formal and informal carers, and follow-up for informal carers if pwa died (all specific patients).<br>Additional general questionnaire for formal carers (informal carers nominated by pwas).

Publisher

UK Data Service

Publication year

1993

Terms of data access

The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.

Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you.

McCann, K. (1991) 'The experience of having a positive HIV antibody test', AIDS Care, 43-53
McCann, K. (1990) 'Care in the community and by the community', AIDS Care, 421-424
McCann, K. (1992) 'Attitudes towards and use of general practitioner services among homosexual men with HIV infection or AIDS', British Journal of General Practice, 107-110
McCann, K. (1992) 'The role of informal carers in supporting gay men who have HIV related illness:: what do they do and what are their needs?', AIDS Care, 25-34
McCann, K. (1991) 'The work of a specialist AIDS home support team :: the views and experiences of patients using the service', Journal of Advanced Nursing, 832–836
McCann, K. (1992) 'The impact of receiving a positive HIV antibody test :: factors associated with response', Counselling Psychology Quarterly, 37-45
McCann, K. (1992) 'The voluntary sector, gay men and HIV/AIDS' in P. Aggleton, H. Hart and P. Davis (eds.), , London | Washington D.C.: Falmer Press. ISBN978-0750700399