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Estimating the Prevalence of Autism Spectrum Conditions in Adults: Extending the 2007 Adult Psychiatric Morbidity Survey
Creator
Brugha, T., University of Leicester, Department of Health Sciences
Spiers, N., University of Leicester, Department of Health Sciences
Study number / PID
7082 (UKDA)
10.5255/UKDA-SN-7082-1 (DOI)
Data access
Restricted
Series
Not available
Abstract
Abstract copyright UK Data Service and data collection copyright owner.The main aim of the survey was to extend the 2007 Adult Psychiatric Morbidity Survey (APMS) prevalence estimate of autism among adults aged 18 years or over, to include adults with learning disabilities aged 18 years and over living in private households or communal care establishments. Fieldwork was carried out in Leicestershire, Lambeth and Sheffield between August 2010 and April 2011.
The specific objectives of the study were:to identify a representative group of adults with learning disabilities who were either: (a) living in private households but not able to participate in the APMS 2007 due to learning disability; or (b) living in communal care establishments and thus not covered in the APMS 2007 sample;to interview the adults with learning disabilities living in private households who would not have been able to take part in the APMS 2007 with two clinical assessments for autism (depending on ability level) - module 1 or module 4 of the Autism Diagnostic Interview Schedule (ADOS);to interview carers of a sub-sample of adults with learning disabilities with two validated clinical assessments to calibrate module 1 of the ADOS;to combine the acquired prevalence rates of autism in adults with learning disabilities who live in private households and who live in communal care establishments with the prevalence of autism in adults without learning disabilities living in private households (from the APMS 2007) to derive an overall prevalence estimate for autism among adults;to perform sensitivity analyses of the combined prevalence estimate to take into account adults without learning disability who live in communal care establishments.;The main APMS 2007 study is held at the UK Data Archive under SN 6379.
Main Topics:The variables cover: residence (private household or communal care establishment); sex, age, score on Autism Diagnostic Interview Schedule (ADOS); ADOS diagnosis.
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
01/08/2010 - 01/04/2011
Country
England
Time dimension
Cross-sectional (one-time) study
Analysis unit
Individuals
Subnational
Universe
Adults with learning disabilities aged 18 and over living in private households (learning disability sufficiently severe to exclude them from the APMS series) or communal care establishments, in 2010 - 2011
Sampling procedure
Multi-stage stratified random sample
Kind of data
Numeric
Data collection mode
Face-to-face interview
Self-completion
Clinical measurements
Access
Publisher
UK Data Service
Publication year
2012
Terms of data access
The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.