Study title

Data collection is from a parallel group, two-arm, multicentre, feasibility, randomised controlled trial to examine the feasibility of conducting a definitive randomised trial comparing the clinical and cost-effectiveness of the PRIDE intervention (a self-management intervention designed to promote living well and enhance independence) offered in addition to usual care to usual care alone for people with mild dementia. This was work package 4 of the Promoting Independence in Dementia Research Programme funded by the ESRC and NIHR Programme for Applied Research.People with dementia lose much more than just their memory and daily living skills. They can also lose their independence, their dignity and status, their confidence and morale, and their roles both within the family and beyond. They can often be seen as a burden by society, their families and even by themselves, and feel unable to contribute to society, and they lack opportunities to reciprocate by doing things for others. This adds to the stigmatising of people even if they only have mild memory problems. The focus of this study is promoting independence in dementia which could have substantial benefits for the people with dementia, their families, and NHS and social care. This should translate into major economic (eg reduced costs of care) and societal benefits. Dementia is a national priority and this proposal addresses the Prime Minster's commitment to dementia research and the need to improve community support. In the UK over 800,000 older people have dementia costing the nation over £17 billion a year through the provision of health and social care services. Dementia has profound effects on family carers who through their actions save the UK economy over £6 billion a year. This means there is a need both to better understand the impact of social and lifestyle factors on the broader ageing population at risk of dementia, and to promote independence and quality of life for people with dementia....