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End of or Start of Life? Visual Technology and the Transformation of Traditional Post-mortem: Interview Transcripts, 2016-2017
Creator
Reed, K, University of Sheffield
Ellis, J, University of Huddersfield
Study number / PID
855657 (UKDA)
10.5255/UKDA-SN-855657 (DOI)
Data access
Restricted
Series
Not available
Abstract
Data are transcripts based on qualitative interviews with parents, one set of grandparents and professionals. Professional data relate to interviews with a range of occupational groups including: midwives, pathologists, coroners, obstetricians, neonatologists, anatomical pathology technicians (APTs), police officers, medical illustrators, nurses, hospital chaplains and bereavement support officers. Parent data include transcripts from interviews with parents who had experienced late miscarriage, termination of pregnancy, stillbirth, sudden infant death, SIDS and other forms of neonatal death. One parent provided a written statement because they didn't want to be interviewed & one parent did not want us to disclose large parts of her transcripts. This interview does not appear in ReShare. All transcripts have been completely anonymised. Participant, hospital & place names have all been changed. Any potentially identifying features have been totally anonymised or left blank to protect & ensure the confientiality of participants.End of’ or ‘start of’ life? was a 30-month project funded by the Economic and Social Research Council 2015-2018. The project sought to explore the emerging use of Magnetic Resonance Imaging (MRI) in post-mortem practice, examining the ways in which MRI has the potential to transform the practice of traditional post-mortem, leading to the development of a less invasive examination. The project focused on exploring early life loss (pre and neonatal death) which falls at the intersections of both the ‘start of’ and ‘end of’ life. Using in-depth interviews with parents and go-along interviews and tours with professionals the aims of the project were twofold: To understand how parents/ families who have experienced early life loss feel about, and experience, the (MRI) post-mortem process and to explore the impact of this new technological application on professional practice, and relationships between professionals from different fields
The...
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
01/03/2016 - 31/05/2017
Country
United Kingdom
Time dimension
Not available
Analysis unit
Individual
Universe
Not available
Sampling procedure
Not available
Kind of data
Text
Data collection mode
The research design was informed by an advisory team made up of various professionals, representatives from bereavement charities (including bereaved parents) and one manufacturer of MRI systems. We conducted 27 in-depth interviews with a range of professionals whose work informed the process of post-mortem. These include: Coroners, Obstetricians, Chaplains, Radiologists, Radiographers, Midwives, Medical Photographers, Bereavement Support, Nurses, Neonatologists, Pathologists, Mortuary Technicians, Funeral Directors, Police Officers, Paediatric Surgeons. We have asked professionals to tell us about their work practices, including (where appropriate) the role of MRI in their work. We have also conducted 22 in-depth interviews with bereaved parents and other family members. These were recruited via local online forums, networks, memorial services, established support organisations (Sands and Lullaby Trust), and mortuary MRI post-mortem consent forms. These interviews were conducted on a face-to-face basis or via the telephone. One parent provided a written statement. The sample consisted mostly of parents although we have interviewed one set of grandparents. In total the study included stories from 20 women and 7 men. The approach taken during these interviews has centred on asking parents to tell us their stories, from detailing their experiences of pregnancy to the loss of their baby. We also invited parents to bring memory items along with them to interviews in order to help them to talk through their experiences of loss.
Funding information
Grant number
ES/M010732/1
Access
Publisher
UK Data Service
Publication year
2022
Terms of data access
The UK Data Archive has granted a dissemination embargo. The embargo will end on 18 August 2023 and the data will then be available in accordance with the access level selected.