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Autistic Adults Online: Understanding and Enabling Autistic Sociality in Digital Networking Environments, 2020-2023
Creator
Koteyko, N, Queen Mary University of London
Study number / PID
856556 (UKDA)
10.5255/UKDA-SN-856556 (DOI)
Data access
Restricted
Series
Not available
Abstract
The proposed study aimed to provide a systematic linguistic and ethnographic analysis of how social networking sites (SNS) were used by autistic adults for social interaction. The overall objective of the study was to investigate how the opportunities for interaction and relationship building, as well as digital surveillance, on SNS, were shaping the experiences of autistic users. Furthermore, the study aimed to explore how understanding communicative practices within their social and technological contexts could contribute to the design of autism-friendly SNS environments. The collection consists of 27 interview transcripts, 1 information sheet that was distributed to participants at the start of the study, 1 interview consent form that was distributed prior to the interviews, 2 Interview Questions Guide which contains the interview questions that were asked (though note these were semi-structured interviews and not all questions will have been asked in every interview) and this user guide.
The interviews were transcribed by a transcription service called TranscribeIt and the date of transcription is available on the opening page of each interview.The proposed study will provide a systematic linguistic and ethnographic analysis of how social networking sites/SNS are used by autistic adults for social interaction. The last few decades have witnessed a dramatic increase in the recorded prevalence of autism, with an estimated 1% of the adult population in the UK having an autism spectrum disorder. Most autism research, technology design, and service provision has focused on children and adults who cannot live independently, with little attention to how adults can be supported to succeed in work and social participation. The recognised importance of online networking in initiating and maintaining social connections has led to an increased focus on SNS as spaces of social engagement and social support provision. Our overall aim is to examine how the SNS-based...
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
01/12/2020 - 30/05/2023
Country
United Kingdom
Time dimension
Not available
Analysis unit
Individual
Universe
Not available
Sampling procedure
Not available
Kind of data
Text
Data collection mode
Semi-structured interview with autistic participants about the use of Facebook and Twitter.
Funding information
Grant number
ES/T016507/1
Access
Publisher
UK Data Service
Publication year
2023
Terms of data access
The Data Collection is available for download to users registered with the UK Data Service.