Summary information
Study title
Barriers and enablers to employment: black disabled peoples living with sickle cell disorder 2017-2018
Creator
Dyson, S, De Montfort University
Berghs, M, De Montfort University
Study number / PID
854150 (UKDA)
10.5255/UKDA-SN-854150 (DOI)
Data access
Restricted
Series
Not available
Abstract
A qualitative research project, based on 47 in-depth interviews, examining the reported experiences of adults (aged 18-66) living with sickle cell disease/disorder (SCD) about their work and employment in England.
The project was in partnership with two sickle cell non-governmental organizations (Sickle Cell Society and OSCAR Sandwell). The project examined the barriers and enablers to employment and work for people living with the severe inherited chronic illness sickle cell disorder (SCD).
Topics
Keywords
Methodology
Data collection period
11/02/2017 - 18/10/2018
Country
England
Time dimension
Not availableAnalysis unit
Individual
Universe
Not availableSampling procedure
Not availableKind of data
Text
Data collection mode
Data collection consisted of in-depth interviews with 47 individuals living with SCD in England. Recruited through existing contacts, and through partner sickle cell NGOs, including: the Sickle Cell Society, OSCAR Sandwell, OSCAR Birmingham, OSCAR Nottingham, OSCAR Leicester, Liverpool Sickle Cell and Thalassaemia Support Group, Croydon Sickle Cell and Thalassaemia Support Group, Manchester Sickle Cell Care, Solace (Hackney) and ASYABI (Leeds).
Funding information
Grant number
2C1\100045
Access
Publisher
UK Data Service
Publication year
2020
Terms of data access
The UK Data Archive has granted a dissemination embargo. The embargo will end in March 2021 and the data will then be available in accordance with the access level selected.Commercial use of data is not permitted.
Related publications
Not available