Summary information

Study title

Disabled and Chronically Ill Young Adults' Notions of Freedom 2018

Creator

Virrankari, Lotta (University of Helsinki. Faculty of Social Sciences)

Study number / PID

FSD3359 (FSD)

urn:nbn:fi:fsd:T-FSD3359 (URN)

10.60686/t-fsd3359 (DOI)

Data access

Restricted

Series

Individual datasets

Individual datasets that do not belong to any series.

Abstract

This dataset studied notions that disabled or chronically ill people in Finland had concerning freedom. The study aimed to find out how a possible illness or disability affected feelings and experiences with regard to freedom in life. The data contain 11 transcribed interviews. The study was funded by the Sokra project of the National Institute for Health and Welfare (THL) to coordinate the promotion of social inclusion. In the data, the interviewees shared how their disability or illness affected their everyday lives. They were asked what sort of meanings the interviewees gave to freedom and whether they considered their lives to have freedom. The interviews also discussed, for instance, whether the disability or illness had set limitations or challenges on the participants' lives, future plans or dreams. In addition, experiences were discussed regarding, for instance, schools, health care services and other institutions, and receiving sufficient support and assistance. Additionally, topics covered services, peer support, feelings of being heard, and friends and relatives' attitudes toward getting a diagnosis. Background information included date, gender, age and the illness/disability in question (e.g. epilepsy, cerebral palsy). The data were organised into an HTML index at FSD. The dataset is only available in Finnish.

Methodology

Data collection period

26/06/2018 - 05/09/2018

Country

Finland

Time dimension

Cross-section

Analysis unit

Individual

Universe

Young adults aged 18-29 with a physical disability or somatic long-term illness

Sampling procedure

Non-probability: Availability

Kind of data

Qualitative

Data collection mode

Face-to-face interview

Access

Publisher

Finnish Social Science Data Archive

Publication year

2019

Terms of data access

The dataset is (C) available only for research including master's theses.

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