Study title
Children's Quality of Life: United Kingdom Normative Data for the Generic Children's Quality of Life Measure (GCQ), 1997-1998
Creator
Study number / PID
4412 (UKDA)
10.5255/UKDA-SN-4412-1 (DOI)
Data access
Restricted
Series
Abstract
Abstract copyright UK Data Service and data collection copyright owner.
This research project was carried out to develop a dataset to produce normative values for healthy children using the Generic Children's Quality of Life (GCQ) measure and to assess the reliability and validity of the measure. The study aimed to assess the quality of life of a population sample of schoolchildren.
The GCQ measure has been developed to allow comparison between chronically ill children and the general child population. The measure assesses how the child views his or her life, and how they would like their life to be. Quality of life is measured as the discrepancy between the two viewpoints. This large community-based survey aimed to establish GCQ norm values for children aged 6-14 years. The respondents to the survey were pupils at a sample of schools stratified by geographical location and social need into four categories: rural affluent; rural low affluence; urban affluent and urban low affluence.
For the second edition of the study (September 2007), some new information was added to the user guide.
Main Topics:
The file includes the normative GCQ data, basic demographic details for each child (age, gender, type of school attended, Jarman index score for postcode of child's home address); children's responses to 25 'perceived self' questions; and 25 'preferred self' questions. The file also includes derived total 'perceived self' scores and total 'preferred self' scores, and the derived difference (or satisfaction) scores for each question for each child. The total difference score, used to derive the child's Quality of Life score, is also present, as is the inclusion/exclusion status of the child's data in the normative set. The file includes data on 841 children, with complete data on 720 of these subjects.
Standard Measures:
Children's Quality of Life measure (GCQ).
Topics
Keywords
Methodology
Data collection period
01/01/1997 - 01/01/1998
Country
Time dimension
Analysis unit
Universe
Schoolchildren aged 6-14 years in Nottinghamshire during the 1997-1998 school year.
Sampling procedure
Kind of data
Data collection mode
Access
Publisher
UK Data Service
Publication year
2001
Terms of data access
The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.
Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you.
Related publications
- Phillips, D., KacKinlay, D. and Collier, J. (2000) 'Norm values for the Generic Children's Quality of Life measure (GCQ) from a large school-based sample', Quality of Life Research, 617-623