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Bereavement During COVID-19 in the UK: A Mixed-methods Study of the Experiences of Bereaved People and Bereavement Services, 2020-2022
Creator
Harrop, E, Cardiff University
Selman, L, University of Bristol
Study number / PID
855751 (UKDA)
10.5255/UKDA-SN-855751 (DOI)
Data access
Restricted
Series
Not available
Abstract
Work Package One; A UK survey of people bereaved between 16th March 2020 and 2nd January 2021. Three time points: baseline (n=711), c. 7 months (n=384) and c. 13 months (n=297) post-bereavement. At baseline 88.6 % were female, 43.8% were bereaved by Covid-19, 55.6 % had lost parents, followed by partners (21.4%). 4.7% identified with a minority ethnic background. Validated measures assessed grief and coping response (Adult Attitude to Grief scale), social support (Inventory for Social Support), prolonged grief disorder (PGD) (Traumatic Grief Inventory) and wellbeing (ONS wellbeing measure).
Work Package Two; Semi-structured interviews with sub-sample of survey participants, interviewed between May 2021 and February 2022. 24 participants completed a first interview and 15 completed a second interview around 4 months after their first interview. 19 were female, 10 had lost partners, 11 were bereaved by Covid-19, 6 identified with minority ethnic background.
Work Package Three: Cross-sectional open online survey of UK voluntary sector bereavement services (March-May 2021) (n=147); Qualitative case study interviews with bereavement service providers at a purposive sample of services (14 services, 24 interviews).COVID-19 is impacting the grief experiences of people bereaved during the pandemic, whilst also affecting the bereavement services that support them. This study aims to investigate the grief
experiences, support needs and use of bereavement support by people bereaved during the pandemic, and the adaptations, challenges and innovation involved in delivering equitable
bereavement support.
We use qualitative and quantitative methods in three work packages:
(WP1) A UK survey at three time points: baseline, 7 and 13 months post-death. Recruitment via social media, organisations representing minority ethnic groups, and bereavement
organisations. Questions investigate the impact of end-of-life and bereavement experiences during COVID-19 and subsequent...
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
28/08/2020 - 04/02/2022
Country
United Kingdom
Time dimension
Not available
Analysis unit
Individual
Organization
Universe
Not available
Sampling procedure
Not available
Kind of data
Numeric
Text
Data collection mode
We use qualitative and quantitative methods in three work packages: (WP1) A UK survey at three time points: baseline, 7 and 13 months post-death. Recruitment via social media, organisations representing minority ethnic groups, and bereavement organisations. Questions investigate the impact of end-of-life and post-death experiences during COVID-19 and subsequent access to, needs for and experiences of bereavement support. Validated measures assess grief and coping response (Adult Attitude to Grief scale), social support (Inventory for Social Support), prolonged grief disorder (PGD) (Traumatic Grief Inventory) and wellbeing (ONS wellbeing measure). (WP2) Longitudinal semi-structured telephone interviews (2 time-points) with a sample of respondents exploring experiences of grief and bereavement during COVID-19, including bereavement support and unmet needs. (WP3) An online survey of bereavement service providers which investigates service adaptations, key challenges and approaches to delivering accessible bereavement care during the pandemic. Survey findings informed targeted case studies, developed via telephone interviews, to describe innovative practice.
Funding information
Grant number
ES/V012053/1
Access
Publisher
UK Data Service
Publication year
2022
Terms of data access
The Data Collection is available for download to users registered with the UK Data Service.