Summary information

Study title

Translations and Transformations in Patienthood: Cancer in the Post-genomics Era, 2015-2021

Creator

Kerr, A, University of Glasgow
Chekar, C, University of Lancaster
Swallow, J, University of Edinburgh

Study number / PID

856133 (UKDA)

10.5255/UKDA-SN-856133 (DOI)

Data access

Restricted

Series

Not available

Abstract

The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh). The collection consists of interviews with patients, former patients, carers, advocates and professionals about their perspectives and experiences of targeted treatments for cancer.

The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh)

Methodology

Data collection period

01/01/2015 - 31/12/2021

Country

United Kingdom

Time dimension

Not available

Analysis unit

Individual

Universe

Not available

Sampling procedure

Not available

Kind of data

Text

Data collection mode

Data was collected via qualitative semi-structured interviews with patients, former patients, carers, advocates and professionals about their perspectives and experiences of targeted treatments for cancer.

Funding information

Grant number

Unknown

Access

Publisher

UK Data Service

Publication year

2022

Terms of data access

The Data Collection is available from an external repository. Access is available via Related Resources.

Related publications

Not available