Summary information

Study title

The social process of everyday decision-making by people with dementia and their spouses.

Creator

Boyle, G, University of Bradford

Study number / PID

850849 (UKDA)

10.5255/UKDA-SN-850849 (DOI)

Data access

Restricted

Series

Not available

Abstract

This two-year research project will involve talking to couples living with dementia about the types of decisions they make every day and how they go about making these decisions. The study will develop a better understanding of how couples living with dementia make everyday decisions and identify the practical support that can facilitate people with dementia to make decisions. The research will be carried out in Bradford (starting January 2010) by Dr. Geraldine Boyle from the University of Bradford and Dr. Lorna Warren from the University of Sheffield. Ethical approval will be obtained from the National Social Care Research Ethics Committee. People with dementia and their spouses attending social cafes or support groups run by the Alzheimer's Society (or a community organisation) will be invited to take part in the study. Approximately twenty-four couples will be interviewed about the types of decisions they make every day and how they go about making these decisions. The researchers will also spend time at home with the couples, observing them as they go about their daily routines and make day-to-day decisions. The research findings should promote better understanding of how people with dementia can make decisions and how to involve them in decision-making.

Methodology

Data collection period

29/03/2010 - 27/06/2012

Country

United Kingdom

Time dimension

Not available

Analysis unit

Household
Individual

Universe

Not available

Sampling procedure

Not available

Kind of data

Text

Data collection mode

Semi-structured interviews

Funding information

Grant number

RES-062-23-2038

Access

Publisher

UK Data Service

Publication year

2013

Terms of data access

The Data Collection is available for download to users registered with the UK Data Service. All requests are subject to the permission of the data owner or his/her nominee. Please email the contact person for this data collections to request permission to access the data, explaining your reason for wanting access to do the data. Once permission is obtained, please forward this to the ReShare administrator.

Related publications

Not available