Summary information

Study title

Making Reading Real: Survey Data, 2022

Creator

Suarez Gonzalez, A, UCL

Study number / PID

856165 (UKDA)

10.5255/UKDA-SN-856165 (DOI)

Data access

Restricted

Series

Not available

Abstract

What is the problem I am solving? How would you feel if, while reading this text, letters and words started merging or disappearing, making your reading impossible, and you knew there was nothing you could do to recover your reading ability? Frightening. Devastating. That is precisely the experience of millions of people in the world who have had a stroke or live with neurodegenerative conditions affecting the back of the brain – the area that controls vision. Science cannot repair a damaged brain, but in our research, I found a way to manipulate the text displayed in a reader device to compensate for this brain damage and make reading possible again. During this grant, we aim to convert these manipulation techniques into a commercially viable app to bring reading back to the lives of people with brain injury. For that purpose, we will release an MVP of the app and will collect anonymous user data to better understand the behaviour of the app beyond the clinical setting. The collection contains data collected via the app and online surveys – anonymous data. The app collected data from users (e.g., age, gender, country, type of brain injury). Data does not contain any personal identifiable data from users.What is the problem I am solving? How would you feel if, while reading this text, letters and words started merging or disappearing, making your reading impossible, and you knew there was nothing you could do to recover your reading ability? Frightening. Devastating. That is precisely the experience of millions of people in the world who have had a stroke or live with neurodegenerative conditions affecting the back of the brain – the area that controls vision. Science cannot repair a damaged brain, but in our research, I found a way to manipulate the text displayed in a reader device to compensate for this brain damage and make reading possible again. During this grant, we aim to convert these manipulation techniques into a commercially viable app to bring...
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Methodology

Data collection period

21/04/2022 - 17/11/2022

Country

United Kingdom

Time dimension

Not available

Analysis unit

Other

Universe

Not available

Sampling procedure

Not available

Kind of data

Numeric
Text

Data collection mode

We used the survey service Typefrom. 95 individuals completed the questionnaires online. The survey was embedded into the reading app, which is an assistive technology to support people with brain related visual impairment.

Funding information

Grant number

ES/W006405/1

Access

Publisher

UK Data Service

Publication year

2023

Terms of data access

The UK Data Archive has granted a dissemination embargo. The embargo will end on 10 January 2024 and the data will then be available in accordance with the access level selected.

Related publications

Not available