Summary information

Study title

Self-building social care: Interviews and focus groups with people with learning disabilities and key practitioners 2018-2019

Creator

Coverdale, A, University of Southampton

Study number / PID

854243 (UKDA)

10.5255/UKDA-SN-854243 (DOI)

Data access

Restricted

Series

Not available

Abstract

These data were generated as part of a two-year ESRC-funded research project examining how people with learning disabilities and their allies are responding to changes in social care provision in the UK, as traditional day services close and policy shifts towards personalisation and community-based enterprises. Using the concept of 'self-building’ to identify emergent practices and learning, researchers at the University of Southampton and the University of Dundee sought to develop case studies in four geographical areas in the UK: an urban and rural area in the South of England, and an urban and rural area in Scotland. The transcripts comprise interviews with local authority commissioners (n=5) and practitioners from supporting organisations (n=22), and focus groups and follow up individual interviews with people with learning disabilities (n=25).Self-build Social Care was a two-year research project (Feb 2018 – Feb 2020) funded by the Economic and Social Research Council (Reclaiming social care: Adults with learning disabilities seizing opportunities in the shift from day services to community lives (ES/P011764/1)) and carried out by researchers at the University of Southampton and the University of Dundee. With policy shifts towards personalisation and greater independence, social care provision in the UK is transitioning, with the closure of local authority-led day services and the call for more community-led initiatives. This coincided with local authorities facing significant cuts to public spending, resulting in long-term reductions in social care budgets for people with learning disabilities and a tightening of eligibility criteria. There had been little research into the lived experiences of people with learning disabilities and their allies as they responded to these changes. Therefore, the project sought to develop case studies in four geographical areas: one city and one county-wide rural area in both England and Scotland. Through observations in the...
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Methodology

Data collection period

15/05/2018 - 19/06/2019

Country

England, Scotland

Time dimension

Not available

Analysis unit

Individual
Organization

Universe

Not available

Sampling procedure

Not available

Kind of data

Text

Data collection mode

The interviews were conducted face-to-face and via telephone in four areas in the UK: an urban and rural area in the South of England, and an urban and rural area in Scotland. 25 people with learning disabilities, and semi-structured interviews with 5 local authority commissioners and key practitioners from 22 supporting organisations were interviewed. In phase one we conducted a scoping review of learning disability provision in each of the four case-study areas by visiting service providers and organisations, conducting field observations and interviewing managers and staff. In phase two we conducted focus groups with people with learning disabilities from selected organisations in each case study area and follow up individual interviews with each participant. The following resources were used to prompt and support discussions: weekly timetables – participants documented a typical week in their lives; support circles – participants identified key people in their lives; photovoice – some participants also chose to take photographs of their daily lives to share and discuss in focus group sessions and interviews. All interviews and focus groups were audio recorded and professionally transcribed. Participants were offered the opportunity to see their transcripts before consenting for the data to be archived.In the interviews with people with learning disabilities, weekly timetables and support circles completed by participants were used to prompt and support discussions, and the templates for these are included in the supplementary documentation in this archive alongside interview schedules and ethical consent forms.

Funding information

Grant number

ES/P011764/1

Access

Publisher

UK Data Service

Publication year

2020

Terms of data access

The Data Collection is available for download to users registered with the UK Data Service.

Related publications

Not available