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Summary information

Study title

Disability in Adolescence, 1977-1979: Psychological and Social Problems of Teenagers with Cerebral Palsy and Spina Bifida with Hydrocephalus

Creator

Anderson, E. M., University of London, Institute of Education, Thomas Coram Research Unit
Clarke, L., University of London, Institute of Education, Thomas Coram Research Unit

Study number / PID

2264 (UKDA)

10.5255/UKDA-SN-2264-1 (DOI)

Data access

Restricted

Series

Not available

Abstract

Abstract copyright UK Data Service and data collection copyright owner.


The purpose of this study was:
  • to ascertain the nature and extent of psychological and social problems in adolescents with congenital cerebral palsy or spina bifida with hydrocephalus
  • to identify some of the factors associated with good or poor `adjustment'
  • to assess the adequacy of services available, within and outside school, during the transition from school to life afterwards
  • to follow-up teenagers after they had left school to examine the changes during the transition to adult life.

Main Topics:

Variables
Psychological adjustment ; social problems ; service provision ; school services, change in post-school year. Maternal health.
Measurement Scales
Rutter Teacher Scale (Scale B) : Rutter (1967) <i>Journal of Child Psychology and Psychiatry</i>
Health Questionnaire (Malaise Inventory) : Rutter et al. (1970) in <i>Clinics in Developmental Medicine</i>, 35-6 (Spastics Society/Heinemann)
Overall psychological adjustment and overall quality of social life : ratings calculated from questionnaires
Pultibec system (for classifying functional severity of handicap) : Linden (1963) in <i>Developmental Medicine and Child Neurology</i>, 5, pp125-145

Topics

Specific diseases, disorders and medical conditionsSpecific social services: use and availabilityGeneral health and well-beingYouth

Keywords

ABSENTEEISMADOLESCENTSADVICEAGEAIDS FOR THE DISABLEDCHOIRSANXIETYAPARTMENTSAPPLICATION FOR EMPLOYMENTATTENDANCEATTITUDESBANK ACCOUNTS
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Methodology

Data collection period

Not available

Country

England

Time dimension

Longitudinal/panel/cohort
2 waves

Analysis unit

Individuals
Subnational
Adolescents
Disabled people
Mothers
Parents
Teachers
Women

Universe

Young people (aged 15 or over) with either congenital cerebral palsy or spina bifida and accompanying hydrocephalus living in the North-West and North-East Thames Health Regions (excluding Essex). Data was also collected from parents and teachers.

Sampling procedure

The respondents were traced mainly through Area Health Authority records. After the initial contact quite a large group of families were found to be ineligible for reasons of diagnosis, IQ, or school or family circumstances

Kind of data

Not available

Data collection mode

Face-to-face interview
Self-completion : health questionnaire

Access

Publisher

UK Data Service

Publication year

1987

Terms of data access

The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.

Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you.

Related publications

  • Clarke, A. and Hirst, M. (1989) 'Disability in adulthood :: ten-year follow-up of young people with disabilities'
  • Clark, L. and Anderson, E. (1982) Disability in adolescence, London: Methuen and Co..
  • Hirst, M. (1990) 'Multidimensional representation of disablement : : a qualitative approach' , New York: Routledge.