Summary information

Study title

National Cancer Patient Experience Survey, 2018: Special Licence Access

Creator

NHS England
Quality Health

Study number / PID

8571 (UKDA)

10.5255/UKDA-SN-8571-1 (DOI)

Data access

Restricted

Series

Not available

Abstract

Abstract copyright UK Data Service and data collection copyright owner.The National Cancer Patient Experience Surveys (NCPES) began in 2010, after the 2007 'Cancer Reform Strategy' set out a commitment to establish a new survey programme. The NCPES is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients. It is designed to monitor national progress on cancer care and to help gather vital information on the Transforming Inpatient Care Programme, the National Cancer Survivorship Initiative and the National Cancer Equality Initiative. An Advisory Group was set up for the NCPES with the National Cancer Director, professionals, voluntary sector representatives, academics and patient survey experts. The Group agreed on the following guiding principles and objectives:a standard national survey tool was to be usedsurveys would be conducted at Trust level and identify cancer groupsthe survey would cover all cancers and include the whole care pathwaythe survey should use the word 'cancer' unlike the 2000 and 2004 surveysthe survey focus would be on patients (rather than carers)the data would be used for benchmarking performance across Trusts and by cancer groups where numbers allowthe data would be used to inform national and local policythe data would be made publicly available whilst observing patient data protection requirements and maintaining confidentiality.The survey is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition-specific charities to improve services for patients. The NCPES has been replicated in Wales (see SN 7510), Northern Ireland, the Isle of Man, parts of Australia, and the Middle East. Further information can be found on the NHS...
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Methodology

Data collection period

Not available

Country

England

Time dimension

Repeated cross-sectional study

Analysis unit

Individuals
National

Universe

73,817 patients with a primary diagnosis of cancer, 2018. The 2018 Cancer Patient Experience Survey (England) captures data from all cancer patients in active treatment in all Hospitals during the period April-June 2018; all cancers are included, defined by ICD10 codes C00-99 and D 05 (excluding C44 and C84). Cancer patients in active treatment are defined as in-patients or day cases with a diagnosis of cancer in the primary diagnosis field (as distinct from other diagnosis fields). These definitions have been substantially the same since 2010.

Sampling procedure

No sampling (total universe)

Kind of data

Numeric

Data collection mode

Telephone interview
Web-based experiment

Access

Publisher

UK Data Service

Publication year

2019

Terms of data access

The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.

Commercial use is not permitted.

Use of the data requires approval from the data owner or their nominee. Users must apply for access via a Special Licence application.

Data storage and access are limited to the UK and European Economic Area countries.

Related publications

Not available