Study title

The record contains 5 bundles of data described below: 1. Longitudinal cohort study: A longitudinal cohort study from 97 care homes around England, about 1483 residents living with dementia. 2. Follow-up qualitative study: A follow-up qualitative study as part of the randomised controlled trial of the acceptability of the MARQUE care home staff intervention to manage agitation and improve quality of life. 3. Qualitative interviews with family carers: Qualitative interviews with family carers of people with dementia who were currently in hospital or living in a care home. 4. Ethnographic observational data: Observational data of people with severe dementia who are either living in care homes or admitted to an acute medical ward. 5. Feasibility trial: Data from a feasibility trial of an intervention to improve the management of agitation in care home residents living with severe dementia.In the UK about 820,000 people live with dementia with numbers increasing rapidly as the population ages. The Government's "Challenge on Dementia" aims to drive improvements in health and care, create dementia friendly communities and improve research. Responding to this challenge, our MARQUE programme "Managing Agitation and Raising Quality of Life", aims to increase knowledge about dementia, agitation and personhood. We will use the programme to: -develop our theoretical knowledge of dementia, agitation, how people with dementia and their carers experience these and their relationship to citizenship and personhood. -reduce agitation in people with moderate and severe dementia and thus increase quality of life, through the known link between agitation and quality of life. -mentor existing and train new researchers, to build a legacy of trained dementia researchers. Agitation is common, occurring in about 50% of people with moderate or severe dementia every month, is distressing for them and for those around them. The symptoms include restlessness, pacing,...