Summary information

Study title

National Cancer Patient Experience Survey, 2016

Creator

NHS England
Quality Health

Study number / PID

8362 (UKDA)

10.5255/UKDA-SN-8362-1 (DOI)

Data access

Restricted

Series

Not available

Abstract

Abstract copyright UK Data Service and data collection copyright owner.The National Cancer Patient Experience Surveys (NCPES) began in 2010, after the 2007 'Cancer Reform Strategy' set out a commitment to establish a new survey programme. The NCPES is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients. It is designed to monitor national progress on cancer care and to help gather vital information on the Transforming Inpatient Care Programme, the National Cancer Survivorship Initiative and the National Cancer Equality Initiative. An Advisory Group was set up for the NCPES with the National Cancer Director, professionals, voluntary sector representatives, academics and patient survey experts. The Group agreed on the following guiding principles and objectives:a standard national survey tool was to be usedsurveys would be conducted at Trust level and identify cancer groupsthe survey would cover all cancers and include the whole care pathwaythe survey should use the word 'cancer' unlike the 2000 and 2004 surveysthe survey focus would be on patients (rather than carers)the data would be used for benchmarking performance across Trusts and by cancer groups where numbers allowthe data would be used to inform national and local policythe data would be made publicly available whilst observing patient data protection requirements and maintaining confidentiality. The survey is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients. The NCPES has been replicated in Wales (see SN 7510), Northern Ireland, the Isle of Man, parts of Australia, and the Middle East. Further information can be found on the Quality...
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Methodology

Data collection period

01/10/2016 - 01/03/2017

Country

England

Time dimension

Repeated cross-sectional study

Analysis unit

Individuals
National

Universe

Patients in England who had received active treatment for cancer in all hospitals during the period April-June 2016. All cancers are included, defined by ICD10 codes C00-99 and D 05 (excluding C44 and C84). Cancer patients in active treatment are defined as in-patients or day cases with a diagnosis of cancer in the primary diagnosis field (as distinct from other diagnosis fields).

Sampling procedure

No sampling (total universe)

Kind of data

Numeric

Data collection mode

Web-based interview
Telephone interview
Postal survey

Access

Publisher

UK Data Service

Publication year

2018

Terms of data access

The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.

Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you.

Related publications

Not available