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Social Dynamics of Public Engagement in Stem Cell Research, 2005-2007
Creator
Faulkner, W., University of Edinburgh, School of Social & Political Studies, Science Studies Unit
Cunningham-Burley, S., Centre for Research on Families and Relationships
Parry, S., University of Edinburgh, Research Centre for Social Sciences
Smith, A., Unknown Affiliation
Study number / PID
6401 (UKDA)
10.5255/UKDA-SN-6401-1 (DOI)
Data access
Restricted
Series
Not available
Abstract
Abstract copyright UK Data Service and data collection copyright owner.This is a qualitative data collection.
This project had two main aims: to investigate the range of views and concerns of people hold about stem cell research (SCR), and to explore critically the scope for increasing public engagement in SCR through a range of public engagement techniques. The research was conducted in two distinct but interrelated stages:Stage I used focus groups, a tried and tested social science approach to exploring the views of different people. The 18 focus group discussions covered different issues relating to SCR such as sources of stem cells, applications, uncertainty and public engagement. Participants were drawn from scientists and clinicians working in the area, specialists who were not directly interested in stem cells, and the wider public, including those who may have had particular interest in SCR because of their experience of illness or disability, and others who may not have previously considered this type of research. Users should note that this data collection contains only the data from the 18 focus groups conducted at Stage IStage II involved eight public engagement events of different size and format. While some participants from Stage I attended the events, Stage II brought together a diverse range of people. The aim was to create a stimulating but comfortable environment within which people could discuss issues and learn from each other. Examples of the topics covered at the events included the regulation and commercialisation of SCR, the different sources of stem cells, and what people thought about using human ova for research purposes. The researchers used different formats for these events, based on deliberative methods, allowing people to think carefully about the issues concerned before forming opinions. The researchers held talks, question and answer sessions, small group discussions, ballots and games, all aimed at facilitating debate. In...
Terminology used is generally based on DDI controlled vocabularies: Time Method, Analysis Unit, Sampling Procedure and Mode of Collection, available at CESSDA Vocabulary Service.
Methodology
Data collection period
01/10/2005 - 01/03/2007
Country
Scotland
Time dimension
Cross-sectional (one-time) study
Analysis unit
Individuals
Subnational
Universe
Specialist stakeholders (postdoctoral stem cell scientists, senior stem cell scientists, doctoral stem cell scientists, clinical stem cell researchers and fertility clinic staff); specialist non-stakeholders (postgraduate chemists, inter-faith group and postgraduate social scientists); lay stakeholders (diabetes, spinal injury, dementia, breast cancer, infertility interest and research nurses support groups); and lay non-stakeholders (women trainees, older persons and rural community groups).
Sampling procedure
Purposive selection/case studies
Kind of data
Text
Focus group transcripts
Data collection mode
Focus group
Funding information
Grant number
RES-340-25-0008
Access
Publisher
UK Data Service
Publication year
2010
Terms of data access
The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.
Use of the data requires approval from the data owner or their nominee.