Summary information

Study title

Social Dynamics of Public Engagement in Stem Cell Research, 2005-2007

Creator

Faulkner, W., University of Edinburgh, School of Social & Political Studies, Science Studies Unit
Cunningham-Burley, S., Centre for Research on Families and Relationships
Parry, S., University of Edinburgh, Research Centre for Social Sciences
Smith, A., Unknown Affiliation

Study number / PID

6401 (UKDA)

10.5255/UKDA-SN-6401-1 (DOI)

Data access

Restricted

Series

Not available

Abstract

Abstract copyright UK Data Service and data collection copyright owner.This is a qualitative data collection. This project had two main aims: to investigate the range of views and concerns of people hold about stem cell research (SCR), and to explore critically the scope for increasing public engagement in SCR through a range of public engagement techniques. The research was conducted in two distinct but interrelated stages:Stage I used focus groups, a tried and tested social science approach to exploring the views of different people. The 18 focus group discussions covered different issues relating to SCR such as sources of stem cells, applications, uncertainty and public engagement. Participants were drawn from scientists and clinicians working in the area, specialists who were not directly interested in stem cells, and the wider public, including those who may have had particular interest in SCR because of their experience of illness or disability, and others who may not have previously considered this type of research. Users should note that this data collection contains only the data from the 18 focus groups conducted at Stage IStage II involved eight public engagement events of different size and format. While some participants from Stage I attended the events, Stage II brought together a diverse range of people. The aim was to create a stimulating but comfortable environment within which people could discuss issues and learn from each other. Examples of the topics covered at the events included the regulation and commercialisation of SCR, the different sources of stem cells, and what people thought about using human ova for research purposes. The researchers used different formats for these events, based on deliberative methods, allowing people to think carefully about the issues concerned before forming opinions. The researchers held talks, question and answer sessions, small group discussions, ballots and games, all aimed at facilitating debate. In...
Read more

Methodology

Data collection period

01/10/2005 - 01/03/2007

Country

Scotland

Time dimension

Cross-sectional (one-time) study

Analysis unit

Individuals
Subnational

Universe

Specialist stakeholders (postdoctoral stem cell scientists, senior stem cell scientists, doctoral stem cell scientists, clinical stem cell researchers and fertility clinic staff); specialist non-stakeholders (postgraduate chemists, inter-faith group and postgraduate social scientists); lay stakeholders (diabetes, spinal injury, dementia, breast cancer, infertility interest and research nurses support groups); and lay non-stakeholders (women trainees, older persons and rural community groups).

Sampling procedure

Purposive selection/case studies

Kind of data

Text
Focus group transcripts

Data collection mode

Focus group

Funding information

Grant number

RES-340-25-0008

Access

Publisher

UK Data Service

Publication year

2010

Terms of data access

The Data Collection is available to UK Data Service registered users subject to the End User Licence Agreement.

Use of the data requires approval from the data owner or their nominee.

Related publications

Not available