Summary information

Study title

Data on Medication Adherence in Adults with Neurological Disorders: The NeuroGerAd Study, 2019-2020

Creator

Prell, T, University Hospital Halle, Department of Geriatrics
Schönenberg, A, University Hospital Halle, Department of Geriatrics
Mühlhammer, H, University Hospital Jena, Department of Neurology
Teschner, U, University Hospital Jena, Department of Neurology

Study number / PID

856032 (UKDA)

10.5255/UKDA-SN-856032 (DOI)

Data access

Restricted

Series

Not available

Abstract

In this study, 910 hospitalized older adults (mean age 70.1 years, SD 8.6 years) with neurological disorders (Parkinson's Disease and other movement disorders, N= 303; cerebrovascular disorders, N = 233; neuromuscular disorders, N= 168; epilepsy, N = 48; and miscellaneous neurological diagnoses, N= 158) received a comprehensive geriatric assessment and filled out self-report questionnaires. Data collection took place on the ward of neurology between February 2019 and March 2020. Procedures included a comprehensive baseline assessment during hospital stay and 2 follow-up interviews at 1 and 12 months after hospital discharge. Baseline assessments included demographical data, clinical data, self-report adherence, prescribed medication, mobility, depression, cognition, health care utilization, communication, personality, and health-related QoL. Follow-up interviews asked for changes of medication after discharge, reasons thereof, specific kind of change, and health-related QoL.

Nonadherence to medication is a common issue that goes along with increased morbidity and mortality and immense health care costs. To improve medication adherence and outcome in ill people, their reasons of not taking their prescribed medication must be known. Here a dataset is presented based on the longitudinal observational NeuroGerAd study in adults with neurological disorders (N = 910). The dataset contains demographic background variables as well as measures of adherence, medication changes after hospital discharge, comprehensive geriatric assessments, personality, patient-physician relationship, and health-related quality of life. As such, the dataset offers unique opportunities to enable a plethora of analyses on personal, social, and institutional factors influencing medication adherence

Methodology

Data collection period

01/02/2019 - 01/03/2020

Country

German Federal Republic

Time dimension

Not available

Analysis unit

Individual

Universe

Not available

Sampling procedure

Not available

Kind of data

Numeric
Text

Data collection mode

In this observational longitudinal study, data were collected from people who were treated as inpatient at the Department of Neurology, Jena University Hospital, Jena, Germany between February 2019 and March 2020. Procedures included a comprehensive baseline assessment during hospital stay and 2 follow-up interviews at 1 and 12 months after hospital discharge. Baseline assessments included demographical data, clinical data, self-report adherence, prescribed medication, mobility, depression, cognition, health care utilization, communication, personality, and health-related QoL. Follow-up interviews asked for changes of medication after discharge, reasons thereof, specific kind of change, and health-related QoL. The variables were obtained via medical records, self-report, and face-to-face investigation via questionnaires by trained study staff.

Funding information

Grant number

01GY1804

Access

Publisher

UK Data Service

Publication year

2022

Terms of data access

The Data Collection is available for download to users registered with the UK Data Service. All requests are subject to the permission of the data owner or his/her nominee. Please email the contact person for this data collection to request permission to access the data, explaining your reason for wanting access to the data, then contact our Access Helpdesk.

Related publications

Not available