Summary information

Study title

Secondary Use of Health and Social Care Data 2016

Creator

Finnish Innovation Fund Sitra
Hyry, Jaakko (TNS Gallup Finland)

Study number / PID

FSD3132 (FSD)

urn:nbn:fi:fsd:T-FSD3132 (URN)

10.60686/t-fsd3132 (DOI)

Data access

Restricted

Series

Individual datasets

Individual datasets that do not belong to any series.

Abstract

This survey charted Finnish citizens' as well as social and healthcare service professionals' attitudes and views concerning secondary use of health and social care data in research and development of services. The study contained two target groups: (1) persons who suffered or had a close relative or acquaintance who suffered from one or more chronic conditions, diseases or disorders, and (2) social and healthcare service professionals. First, the respondents' opinions on the reliability of a variety of authorities and organisations were examined (e.g. the police, Kela, register and statistics authorities, universities) as well as trust in appropriate handling of personal data. They were also asked which type of information they deemed personal or not (e.g. bank account number and balance, purchase history at a grocery store, web browsing history, patient records, genetic information, social security number, phone number). They were asked to evaluate which principles they considered important in handling personal health data (e.g. being able to access one's personal data and to have inaccurate data rectified, and being able to restrict data processing), and the study also surveyed how interested the respondents were in keeping track of the use of their health data, and how willing they would be to permit the use of anonymous health data and genetic information for a variety of purposes (e.g. medicine and treatment development, development of equipment and services, and operations of insurance companies). Next, it was examined whether the respondents kept track of their physical activity with a smartphone or a fitness tracker, for instance, and if they would be willing to permit the use of anonymous data concerning physical activity for a variety of purposes. In addition, the respondents' attitudes were charted with regard to developing medicine research by combining anonymous health data and patient records with other data on, for instance, physical activity,...
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Methodology

Data collection period

21/06/2016 - 28/06/2016

Country

Finland

Time dimension

Cross-section

Analysis unit

Individual

Universe

Finnish citizens aged 15 - 79 residing in Finland

Sampling procedure

Probability: Multistage

Kind of data

Quantitative

Data collection mode

Self-administered questionnaire: Web-based (CAWI)

Access

Publisher

Finnish Social Science Data Archive

Publication year

2017

Terms of data access

The dataset is (B) available for research, teaching and study.