Summary information

Study title

Quality of Life of the Mentally Disabled 1991: Severely Disabled

Creator

Autio, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Henriksson, Anja (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Kivilä, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Matikka, Leena (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Qvist, Anne (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Rehumäki, Marjukka (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Vesala, Hannu (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Öhman, Anneli (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Study number / PID

FSD2208 (FSD)

urn:nbn:fi:fsd:T-FSD2208 (URN)

10.60686/t-fsd2208 (DOI)

Data access

Restricted

Series

Individual datasets

Individual datasets that do not belong to any series.

Abstract

The project on the quality of life of the mentally disabled was set in motion by the research unit of the Finnish Association on Intellectual and Developmental Disabilities in 1989. The data were collected with the help of video observation and questionnaires aimed at their support persons, because interviews were not possible to conduct. The quality of life of the severely disabled was studied from several viewpoints. Their support persons, such as nurses or family members, assessed the housing, hobbies, social relationships, work and daily activities of the disabled person they worked with. Housing was examined by asking about chances to influence housing conditions as well as limitations set by others. The questions on work and daily activities included the content and meaningfulness of the activities, the disabled person's ability to perform certain tasks, and learning new skills. Other areas of life were investigated by asking about dining, managing one's own affairs, social relationships, and whether the target person had the power to decide on his/her clothing, for example. The background information was collected at the same time with the interviews of the mildly disabled. Background variables included the target person's year of birth, mother tongue, Special Services District, parents' education level and occupation, and the number of siblings. Relating to target person's disability, questions about mobility, oral expression, and living in institutions were asked. In addition to the background information on target persons, some background information on the support persons was collected as well. Because some of the support persons were health care professionals and others family members, the questions varied slightly according to the respondent. The common background variables included the respondent's gender and year of birth. The health care professionals were asked about their job title, work experience in the field, and how long they had known the...

Social sciencesMinorities

Activities of daily livingHousingIntellectual impairmentInterpersonal relationsLeisure timeLiving conditionsMental healthMentally disabled personsQuality of lifeSocial networksSocial servicesSocial skills

Data collection period

06/1990 - 05/1992

Country

Finland

Time dimension

Cross-section

Analysis unit

Individual

Universe

Finnish severely disabled persons aged 18 or over and living in Finland

Excludes: the Åland Islands

Sampling procedure

Probability: Systematic random

Kind of data

Quantitative

Data collection mode

Self-administered questionnaire: Paper

Publisher

Finnish Social Science Data Archive

Publication year

2007

Terms of data access

The dataset is (B) available for research, teaching and study.

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