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Best practices in sharing individual level health research data in low and middle income settings: A qualitative study of views of stakeholders in India
Transcripts of in-depth interviews and group discussions with managers, researchers, ethics committee members, field data collectors and community members on the issues around ethical data sharing in the context of research involving women and children in urban India. We interviewed researchers, managers, and research participants associated with a Mumbai non-governmental...
Wellcome Science Education Tracker, 2019
Abstract copyright UK Data Service and data collection copyright owner.The Science Education Tracker (SET 2019) is the second wave of a survey series that began in 2016 (SET 2016 - see SN 8119). The survey series is commissioned by Wellcome, with additional funding from the Department for Education (DfE), United Kingdom Research and Innovation (UKRI) and the Royal...
Promoting Independence in Dementia: A Feasibility Randomised Controlled Trial, 2018-2020
Data collection is from a parallel group, two-arm, multicentre, feasibility, randomised controlled trial to examine the feasibility of conducting a definitive randomised trial comparing the clinical and cost-effectiveness of the PRIDE intervention (a self-management intervention designed to promote living well and enhance independence) offered in addition to usual care to...
Interviews on Trials Transparency at Public Research Institutions in the UK, 2020-2021
Ensuring the reporting of clinical research is essential to informed evidence generation in medicine. The UK has seen politicians, funders, and other stakeholder focus on transparency which has translated to pressure on sponsors to ensure greater transparency of their research. This study aimed to collect the institutional perspective to transparency issues in clinical...
UCL CEPEO - LSE COVID-19 Survey of Young People, 2020
Abstract copyright UK Data Service and data collection copyright owner.The majority of young people faced an unprecedented six-month absence from school, college, and university from March to September 2020 The UCL CEPEO - LSE COVID-19 Survey of Young People, 2020 presents high-quality and timely evidence on the differential impact of the pandemic on the learning...
What Does Research Impact Mean to Participants? Interview Study To Explore Participants’ Views on the Impacts of Healthcare Research, 2021-2022
To explore research participants’ views on the impacts of research involvement, specifically for research that has been led by NMAHPP healthcare professionals. NMAHPP - nursing, midwifery, allied health professions, pharmacy and psychology. 21 current and previous research participants/patient research advisory group members who are/have been involved in UK research led by...
Wellcome Science Education Tracker, 2016
Abstract copyright UK Data Service and data collection copyright owner.The Science Education Track (SET) is designed to provide evidence on a range of key indicators for science engagement, education and career aspirations among young people in England. The survey is based on a nationally representative sample of 4,081 young people in school years 10 to 13 (aged 14-18)...
Wellcome Trust Monitor Waves 1-3 Combined Adults Data, 2009-2015
Abstract copyright UK Data Service and data collection copyright owner.The Wellcome Trust Monitor is a unique survey of UK adults' (and in some waves, young people's) views around science and biomedical research. The findings are representative of the UK population and provide fresh and significant insights to inform science communication practice and how research priorities...
Data on Medication Adherence in Adults with Neurological Disorders: The NeuroGerAd Study, 2019-2020
In this study, 910 hospitalized older adults (mean age 70.1 years, SD 8.6 years) with neurological disorders (Parkinson's Disease and other movement disorders, N= 303; cerebrovascular disorders, N = 233; neuromuscular disorders, N= 168; epilepsy, N = 48; and miscellaneous neurological diagnoses, N= 158) received a comprehensive geriatric assessment and filled out self-report...