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https://datacatalogue.cessda.eu/oai-pmh/v0/oai
0a9876a233829bcef1f88e82220e7b7fbab26f639302d16ecb608ff45b4b1f67
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DDI2.5 XML CODEBOOK RECORD FOR STUDY NUMBER 2264
Disability in Adolescence, 1977-1979: Psychological and Social Problems of Teenagers with Cerebral Palsy and Spina Bifida with Hydrocephalus
226410.5255/UKDA-SN-2264-1
Anderson, E. M., University of London, Institute of Education, Thomas Coram Research Unit
Clarke, L., University of London, Institute of Education, Thomas Coram Research Unit
No information recorded
Department of Health and Social SecurityNational Fund for Research into Crippling Diseases
UK Data Service
22 October 1987
ABSENTEEISMADOLESCENTSADVICEAGEAIDS FOR THE DISABLEDCHOIRSANXIETYAPARTMENTSAPPLICATION FOR EMPLOYMENTATTENDANCEATTITUDESBANK ACCOUNTSBATHROOMSBEDROOMSBEHAVIOURAL DISORDERSBICYCLESBOARDING SCHOOLSBOOK READERSHIPCARE OF DEPENDANTSCARE OF THE DISABLEDCEREBRAL PALSYCHILD CARECHILD-MINDINGCHILDRENCINEMA ATTENDANCECLUBSHIGHER EDUCATION INSTITUTIONSCOMMUTINGCONDITIONS OF EMPLOYMENTCONGENITAL DISORDERSCOOKINGDAY CAREDEPRESSIONDISABLED PERSONSDISCUSSION GROUPSDISEASESDOMESTIC RESPONSIBILITIESDRIVINGDRUG USEEDUCATIONAL BACKGROUNDEDUCATIONAL COURSESEDUCATIONAL EXPECTATIONSELEVATORSEMOTIONAL DISTURBANCESEMOTIONAL STATESEMPLOYMENTEMPLOYMENT HISTORYENROLMENTEPILEPSYEXAMINATIONSEXPENDITUREEXTRACURRICULAR ACTIVITIESFAMILIESFAMILY ENVIRONMENTFAMILY MEMBERSFAMILY SIZEFASHIONFATHERSFERTILITYFERTILITYFINANCEFINANCIAL RESOURCESFINANCIAL SUPPORTFREE WILLFRIENDSFRIENDSHIPFURTHER EDUCATIONGENDERGENETICSHEALTHHEALTH PROFESSIONALSHEARING AIDSHEARING IMPAIRMENTSHETEROSEXUAL RELATIONSHIPSHIGHER EDUCATIONHOBBIESHOLIDAYSHOME OWNERSHIPHOSPITAL SERVICESHOUSEHOLDSHOUSEWORKHOUSINGHOUSING FACILITIESHYDROCEPHALUSIN-SERVICE TRAININGINCOMEINCONTINENCE AIDSINDOOR SPORTSINFANTSINFORMATIONINFORMATION SOURCESINTERPERSONAL COMMUNICATIONINTERPERSONAL RELATIONSJOB CHANGINGJOB HUNTINGLAVATORIESLEAVELEISURE TIMELEISURE TIME ACTIVITIESLIBRARIESLICENCESMARITAL STATUSMARRIAGEMARRIED MENMEDICAL CAREMEMBERSHIPMENSTRUATIONMENTAL HEALTHMOTHERSMOTOR PROCESSESMOTOR VEHICLESMUSICMUSICAL INSTRUMENTSNEWSPAPER READERSHIPOBESITYOCCUPATIONSHOSPITAL OUTPATIENT SERVICESPARENT ATTITUDEPARENT RESPONSIBILITYPARENT-CHILD RELATIONSHIPPARENTSPARTICIPATIONPEER-GROUP RELATIONSHIPSPERIODICALS READERSHIPPERSONAL APPEARANCEPERSONAL HYGIENEPHYSICAL DISABILITIESPHYSICALLY DISABLED PERSONSPHYSIOTHERAPYPLACE OF RESIDENCEPOCKET MONEYPRIVATE GARDENSPROFESSIONAL CONSULTATIONSPUBERTYPUBLIC TRANSPORTPURCHASINGQUALIFICATIONSRADIO RECEIVERSREADING (ACTIVITY)RECORD PLAYERSRENTED ACCOMMODATIONREPETITIVE WORKRESIDENTIAL CARE OF THE DISABLEDRESIDENTIAL MOBILITYRESPONSIBILITYROOMSSATISFACTIONSAVINGSSCHOOL HOLIDAYSSCHOOL-LEAVINGSCHOOL-LEAVING AGESCHOOL-LEAVING GUIDANCESCHOOL-STUDENT RELATIONSHIPSCHOOLSSECONDARY EDUCATIONSECONDARY SCHOOLSSEX EDUCATIONSEXUAL BEHAVIOURSHELTERED EMPLOYMENTSHELTERED HOUSINGSIBLINGSSICK LEAVESOCIAL ACTIVITIES (LEISURE)SOCIAL HOUSINGSOCIAL INTERACTIONLONELINESSSOCIAL SECURITYSOCIAL SECURITY BENEFITSSOCIAL SUPPORTSOCIAL WORKERSSCHOOLS FOR THE DISABLEDSPECTACLESSPEECH IMPAIRMENTSSPORTSTAIRSSTATE RETIREMENT PENSIONSSTATUTESSTUDENT EMPLOYMENTSTUDENT TRANSPORTATIONSUICIDESURGERYSWIMMINGTAPE RECORDERSTAXATIONSCHOOLTEACHERSTELEPHONESTELEVISION VIEWINGTERMINATION OF SERVICETHEATRE ATTENDANCETIMETOILET TRAININGTRAININGTRAINING CENTRESTRAINING COURSESTRANSITION FROM SCHOOL TO WORKTRANSPORTTRAVELTRAVELLING TIMEUNEMPLOYEDURINARY INCONTINENCEVISION IMPAIRMENTSVISITS (PERSONAL)CAREERS GUIDANCEVOLUNTARY ORGANIZATIONSWAGESWALKINGWALKING AIDSWATCHINGWHEELCHAIRSWORKING CONDITIONSWORKING MOTHERSHOURS OF WORKYOUTH CLUBSYOUTH ORGANIZATIONSYOUTHADOLESCENCE
Specific diseases, disorders and medical conditionsSpecific social services: use and availabilityGeneral health and well-beingYouth
<P>Abstract copyright UK Data Service and data collection copyright owner.</P>The purpose of this study was:<ul><li>to ascertain the nature and extent of psychological and social problems in adolescents with congenital cerebral palsy or spina bifida with hydrocephalus</li><li>to identify some of the factors associated with good or poor `adjustment'</li><li>to assess the adequacy of services available, within and outside school, during the transition from school to life afterwards</li><li>to follow-up teenagers after they had left school to examine the changes during the transition to adult life.</li></ul><B>Main Topics</B>:<BR>Variables<br> Psychological adjustment ; social problems ; service provision ; school services, change in post-school year. Maternal health.<br> Measurement Scales<br> Rutter Teacher Scale (Scale B) : Rutter (1967) <i>Journal of Child Psychology and Psychiatry</i><br> Health Questionnaire (Malaise Inventory) : Rutter et al. (1970) in <i>Clinics in Developmental Medicine</i>, 35-6 (Spastics Society/Heinemann)<br> Overall psychological adjustment and overall quality of social life : ratings calculated from questionnaires<br> Pultibec system (for classifying functional severity of handicap) : Linden (1963) in <i>Developmental Medicine and Child Neurology</i>, 5, pp125-145
England
BedfordshireGreater LondonHertfordshire
IndividualsSubnationalAdolescentsDisabled peopleMothersParentsTeachersWomen
Young people (aged 15 or over) with either congenital cerebral palsy or spina bifida and accompanying hydrocephalus living in the North-West and North-East Thames Health Regions (excluding Essex). Data was also collected from parents and teachers.
Longitudinal/panel/cohort2 waves
The respondents were traced mainly through Area Health Authority records. After the initial contact quite a large group of families were found to be ineligible for reasons of diagnosis, IQ, or school or family circumstances
Face-to-face interviewSelf-completion : health questionnaire
<p>The Data Collection is available to UK Data Service registered users subject to the <a href="https://ukdataservice.ac.uk/app/uploads/cd137-enduserlicence.pdf" target="_blank">End User Licence Agreement</a>.</p><p>Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you.</p>
See <restrctn>
Clarke, A. and Hirst, M. (1989) 'Disability in adulthood :: ten-year follow-up of young people with disabilities'<i></i>
Disability in adulthood :
Clark, L. and Anderson, E. (1982) <i>Disability in adolescence</i>, London: Methuen and Co..
Disability in adolescence
Hirst, M. (1990) 'Multidimensional representation of disablement : : a qualitative approach' <i></i>, New York: Routledge.
Multidimensional representation of disablement :
https://oai.ukdataservice.ac.uk:8443/oai/provider
2264
2024-11-28T07:21:53Z
ddi:codebook:2_5