2026-05-30T08:44:18Z https://datacatalogue.cessda.eu/oai-pmh/v0/oai

d949bcbe029f3e1e59fbcd5a3634ff16e9f04c707de74de7d0575591d1dfcc7a 2025-06-17T03:25:45Z language:svopenaire_data

Functional development in children and youth with cerebral palsy in Uganda Swedish National Data ServiceSvensk nationell datatjänst Landing page Functional development in children and youth with cerebral palsy in Uganda Functional development in children and youth with cerebral palsy in Uganda 2021-68-1-1https://doi.org/10.5878/txww-hg72 Kakooza-Mwesige, Angelina Kakooza-Mwesige, Angelina Swedish National Data ServiceSvensk nationell datatjänst 2021-08-19 Landing page UgandaUgandaAfrica, EasternÖstafrikaAfrica South of the SaharaAfrika söder om SaharaAfricaAfrikaGeographic LocationsGeografiska namn Medical and Health SciencesMedicin och hälsovetenskapNeurologyNeurologiPediatricsPediatrikPublic Health, Global Health, Social Medicine and EpidemiologyFolkhälsovetenskap, global hälsa, socialmedicin och epidemiologiPhysiotherapySjukgymnastikClinical MedicineKlinisk medicinHealth SciencesHälsovetenskap AIM To follow the functional development of a population-based cohort of children and youth (C&Y) with cerebral palsy (CP) in rural Uganda and compare their development with developmental trajectories from high-income countries (HIC). METHODS Eighty-one C&Y aged 2–17 years with CP were assessed 2015 and 2019 using Gross Motor Function Measure-66 items (GMFM-66), Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), and functional classification systems. We calculated scaled scores (actual scores) and reference scores (amount of deviation from HIC developmental trajectories). Wilcoxon signed rank test was used for statistical analyses. RESULTS C&Y with CP in Uganda exhibited no differences in scaled scores between the first and second assessments for GMFM-66 and PEDI-UG mobility skills, while they exhibited increased PEDI-UG self-care skills (p<0.001). Reference scores were more negative at the second assessment than at the first assessment for GMFM-66 (p=0.002) and PEDI-UG mobility (p=0.036) but not for PEDI-UG self-care. The increased difference in reference scores over the 4 years were primarily driven by younger children (2–5 years) and C&Y with milder impairments. INTERPRETATION The increased difference in reference scores between assessments suggests that C&Y with CP in Uganda develop motor skills at a lower rate than peers in HIC. The dataset contains of the following files: - Functional_development_in Uganda_dataset_Andrews_et_al.csv - Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf Information about the tool Gross Motor Function Measure-66 (GMFM-66): https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfmSyfte Att följa den funktionella utvecklingen för en populationsbaserad kohort av barn och ungdomar med cerebral pares (CP) på landsbygden i Uganda, och jämföra deras utveckling med utvecklingskurvor från höginkomstländer. Metod 81 barn och ungdomar mellan 2-17 år undersöktes 2015 och 2019 med Gross Motor Function Measure-66 (GMFM-66) Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), och funktionella klassifikationssystem. Datasetet består av följande filer: - Functional_development_in Uganda_dataset_Andrews_et_al.csv - Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf Information om verktyget Gross Motor Function Measure-66 (GMFM-66): https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfm 2015-042019-12 UgandaUganda Geographic unitGeografisk enhetHouseholdHushållFamilyFamiljIndividual/PatientIndivid/patient/person Total universe/Complete enumerationHela populationen/total räkning Measurements and testsMätningar och tester Access to data through SND. Access to data is restricted.Åtkomst till data via SND. Tillgång till data är begränsad. https://snd.gu.se 2021-68-1 2021-08-19T09:15:02Z ddi:codebook:2_5