2026-04-19T12:04:02Z https://datacatalogue.cessda.eu/oai-pmh/v0/oai

954798cb6490e21d138b97e4d04d389aa2100d9627fa1183b90f2526150f9254 2025-10-01T03:50:13Z language:enopenaire_data

DDI2.5 XML CODEBOOK RECORD FOR STUDY NUMBER 2985 Life Before Death, 1987 298510.5255/UKDA-SN-2985-1 Seale, C., Institute for Social Studies in Medical Care Cartwright, A., Institute for Social Studies in Medical Care No information recorded Medical Research Council UK Data Service 21 April 1993 ACCIDENTSADVICEAGEANXIETYATTITUDESBUILDING MAINTENANCECANCERCARE IN THE COMMUNITYCARE OF DEPENDANTSCARE OF THE DISABLEDCARE OF THE ELDERLYCAUSES OF DEATHCHARITABLE ORGANIZATIONSCHEMOTHERAPYCHILDRENCLEANINGCOOKINGCOSTSDAY CAREBEREAVEMENTDEPRESSIONDISABLED PERSONSDISEASESDISTANCE MEASUREMENTDOMESTIC APPLIANCESDOMESTIC SERVICESDRUG USEEMOTIONAL STATESFACILITIESFAMILY MEMBERSFINANCIAL RESOURCESFINANCIAL SUPPORTFRIENDSGENDERGENERAL PRACTITIONERSHEALTHHEALTH PROFESSIONALSHEALTH SERVICESHEALTH VISITORSHEARING IMPAIRMENTSHEATING SYSTEMSHOME HELPHOME OWNERSHIPHOME VISITSHOSPITALIZATIONHOSPITAL BED PROVISIONHOSPITAL DISCHARGESHOSPITAL SERVICESHOSPITAL VISITINGHOUSEHOLDSHOUSEWORKHOUSINGHOUSING FACILITIESHOUSING TENUREIMMORTALITYINFORMATIONINFORMATION NEEDSINFORMATION SOURCESINTERPERSONAL COMMUNICATIONINTERPERSONAL RELATIONSKNOWLEDGE (AWARENESS)LAUNDRIESMARITAL STATUSMEDICAL CAREMEDICAL SPECIALISTSMEDICINE EDUCATIONMEDICAL EXAMINATIONSMEDICAL INSTRUMENTSMEDICAL PARTNERSHIPSMEDICAL PRESCRIPTIONSMEDICAL TRAININGMINISTERS OF RELIGIONMOTOR PROCESSESNURSESNURSING CAREHOSPITAL OUTPATIENT SERVICESPAINPAIN CONTROLPATIENTSPERSONAL CONTACTPERSONAL HYGIENEPHYSICIANSPHYSIOTHERAPYPLACE OF BIRTHPRIVATE SECTORPROFESSIONAL CONSULTATIONSPUBLIC SECTORQUALITY OF LIFERADIOTHERAPYRELIGIOUS AFFILIATIONRELIGIOUS SERVICESRENTED ACCOMMODATIONRESIDENTIAL CARE OF THE ELDERLYRESIDENTIAL CARE OF THE SICKRESIDENTIAL MOBILITYRESIDENTS OF INSTITUTIONSROOM SHARINGSATISFACTIONSHELTERED HOUSINGSHOPPINGSHOPSSIBLINGSSICK PERSONSSOCIAL HOUSINGLONELINESSSOCIAL LIFESOCIAL SECURITY BENEFITSSOCIAL SUPPORTSOCIO-ECONOMIC STATUSSTAIRSSTRESS (PSYCHOLOGICAL)SURGERYSYMPTOMSTELEPHONESTERMINALLY ILLTRANSPORTTRAVELLING TIMEURINARY INCONTINENCEVISION IMPAIRMENTSVISITS (PERSONAL) Morbidity and mortalityHealth care services and policies Abstract copyright UK Data Service and data collection copyright owner.1. To describe the last year in the lives of a random sample of adults dying in 1987. 2. To make comparisons with an earlier study* and identify change in the nature and availability of care and in the attitudes and expectations of lay and professional carers. 3. To make some assessment of the influence of the hospice movement on these changes. 4. To describe in more detail than the previous 1969 study, the institutional care of people in the year preceeding their death. 5. To determine the experience and views of the doctors and nurses involved in the care of these people in the last year of their lives. 6. To describe the care and support given to close relatives both after and before the death. *An earlier study Life Before Death, 1969 is held at the Data Archive as Study No. 393.Main Topics: Methodological issues in studying life before death; the roles of professionals, hospitals, hospices, residential and nursing homes, and day centres in caring for the dying; the balance of care; hospice deaths and cancer deaths; experiences of those who died and those who cared for them; changes since 1969. Characteristics of the general practitioners were obtained from DHSS data. 1988 - 198901 January 198801 January 1989 England IndividualsNationalCarersGeneral practitionersMedical consultantsNursesPatientsTerminally ill People who died in 1987 in England, via the views and experiences of: their relatives or others who knew them; their general practitioners; their consultants; their community nurses. Follow-up to cross-sectional study One-stage stratified or systematic random sampleLocal authority areas (or combinations for small numbers of deaths) chosen after stratification into 3 groups: (1) with no hospice or hospice service (2) hospice service but no beds (3) hospice service with beds. For further details see documentation. Face-to-face interviewTelephone interviewPostal surveyQuestionnaire interview with person who knew most about those who died; postal questionnaire to general practitioners and consultants about views and experiences; Face to face, postal and telephone interviewing was used for community nurses. The Data Collection is available to UK Data Service registered users subject to the <a href="https://ukdataservice.ac.uk/app/uploads/cd137-enduserlicence.pdf" target="_blank">End User Licence Agreement</a>.Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you. See <restrctn> Seale, C. (1992) 'Community care for the dying', Nursing Times, 15-21 Community care for the dying Seale, C. (1991) 'Communication and awareness about death :: a study of a random sample of dying people', Social Science and Medicine, 943-952 Communication and awareness about death : Seale, C. and Cartwright, A. (1990) The natural history of a survey :: an account of the methodological issues encountered in a study of life before death [Research report], London: King Edward's Hospital Fund. The natural history of a survey : Cartwright, A. (1992) 'Social class differences in health and care in the year before death', Journal of Epidemiology and Community Health, 54-57 Social class differences in health and care in the year before death Seale, C. (1991) 'Death from cancer and death from other causes :: the relevance of the hospice approach', Palliative Medicine, 12-19 Death from cancer and death from other causes : Cartwright, A. (1990) The role of the general practitioner in caring for people in the last year of their lives [Research report], London: King Edward's Hospital Fund. The role of the general practitioner in caring for people in the last year of their lives Cartwright, A. (1991) 'The relationship between general practitioners, hospital consultants and community nurses when caring for people in the last year of their lives', Family Practice, 350-355 The relationship between general practitioners, hospital consultants and community nurses when caring for people in the last year of their lives Cartwright, A. (1991) 'Is religion a help around the time of death?', Public Health, 79-87 Is religion a help around the time of death? Cartwright, A. (1991) 'The balance of care for the dying between hospitals and the community :: the perceptions of general practitioners, hospital consultants, community nurses and relatives', British Journal of General Practice, 271-274 The balance of care for the dying between hospitals and the community : Seale, C. (1991) 'A comparison of hospice and conventional care', Social Science and Medicine, 147-152 A comparison of hospice and conventional care Cartwright, A. (1991) 'The role of residential and nursing homes in the last year of people's lives', British Journal of Social Work, 627-645 The role of residential and nursing homes in the last year of people's lives Seale, C. (1990) 'Caring for people who die :', Ageing and Society, 413-428 Caring for people who die : Cartwright, A. (1992) 'Changes in the year before death 1969-87', Nursing Times, 51 Changes in the year before death 1969-87 Farrow, G. (1992) 'The role of day centres in caring for people in the final year of their lives', Ageing and Society, 313-327 The role of day centres in caring for people in the final year of their lives Cartwright, A. (1991) 'Changes in life and care in the year before death, 1969-1987', Journal of Public Health, 81-87 Changes in life and care in the year before death, 1969-1987 Seale, C. (1992) 'Community nurses and the care of the dying', Social Science and Medicine, 375-382 Community nurses and the care of the dying Seale, C. (1989) 'What happens in hospices :: a review of research evidence', Social Science and Medicine, 551-559 What happens in hospices : Cartwright, A. (1991) 'The role of hospitals in caring for the people in the last year of their lives', Age and Ageing, 271-274 The role of hospitals in caring for the people in the last year of their lives https://oai.ukdataservice.ac.uk:8443/oai/provider 2985 2024-11-28T07:22:40Z ddi:codebook:2_5