2026-04-24T21:55:19Z https://datacatalogue.cessda.eu/oai-pmh/v0/oai

8ac9afabc00e4f4fdf88122d767ef05c23d10e1a931483a2fca55de020b326f6 2025-12-15T02:52:08Z language:enopenaire_data

The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3, 2016-2017 The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3, 2016-2017 doi:10.7929/ISSDA/76MACD0073-05 IDS-TILDA HRB-IDS-TILDA ISSDAIrish Social Science Data Archive 2024 Social SciencesAgeingDisabilitiesHealthMental healthSocial participationHealth statusIntellectual impairmentSocial integrationPhysical disabilitiesFree willPersonal choice General health and well-beingElderlyEquality, inequality and social exclusion The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with an intellectual disability with the general ageing population. The underpinning values of IDS-TILDA are inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to contribute to the lives of people with intellectual disability. The objectives of IDS-TILDA are: <ul> <li>to understand the health characteristics of people ageing with an intellectual disability;</li> <li>to examine the service needs and health service utilization of people ageing with an intellectual disability;</li> <li>to identify disparities in the health status of adults with an intellectual disability as compared to The Irish Longitudinal Study on Ageing’s (TILDA) findings for the general population; and to support evidence-informed policies, practices and evaluation.</li> </ul> IDS-TILDA Wave 3 provides much needed data on the health, social, economic and environmental circumstances of 609 people as they grow older and how their circumstances change over a period of time. 2016-102017-02 Ireland Individual Individuals with Intellectual Disability aged 40 years and older in the Republic of Ireland. A nationally representative sample was taken. Survey data Longitudinal: Cohort/Event-based Probability: Simple random. The IDS-TILDA sample was drawn randomly from the population of adults aged 40 years and above on the National Intellectual Disability Database (NIDD). At the time of the Wave 1 interviews, the NIDD was an administrative database managed by the Health Research Board (HRB) and contained information on people with an intellectual disability in the Republic of Ireland who are registered with a service provider. For recruitment of the original sample at Wave 1, the dataset contained 26,066 individuals (Kelly et al. 2010). From this, the inclusion criterion of being aged 40 years across all levels of intellectual disability and living circumstances was applied. In total 1,800 individuals were randomly selected by NIDD staff; just over 1,600 of these were provided information and asked to participate in the study and 200 were kept in reserve. Written consent was obtained from 753 individuals (a 46% response rate), either directly by self- consenting individuals (38%, n=285) or by a family member or guardian for those who were unable to self-consent (62%, n=468). The final Wave 1 sample was demographically and geographically representative of the target population within the NIDD; it equated to 8.9% of the total eligible population at the time. Please note that the NIDD is now known as the National Ability Support System (NASS). Face-to-face interview: CAPI/CAMIFace-to-face interview: PAPI ISSDA may only supply data for use in the EEA and adequacy decision countries. The data and its creators shall be cited in all publications and presentations for which the data have been used. The data citation may be in the form on the dataset page or in the form required by the publication. Any work based in whole or part on resources provided by ISSDA, should acknowledge: "The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3, 2016-2017" and also ISSDA, in the following way: “Accessed via the Irish Social Science Data Archive - www.ucd.ie/issda”. McCarron, M., Haigh, M., & McCallion, P. (2017). Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland, Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). https://www.tcd.ie/tcaid/assets/pdf/wave3report.pdf https://issda.ucd.ie/oai doi:10.7929/ISSDA/76MACD 2025-12-11T02:00:00Z ddi:codebook:2_5