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DDI2.5 XML CODEBOOK RECORD FOR STUDY NUMBER 2987 Living with AIDS : The Experience of Homosexual Men with HIV Infection Or AIDS, 1988-1989 298710.5255/UKDA-SN-2987-1 McCann, K., Institute for Social Studies in Medical Care Simms, M., Institute for Social Studies in Medical Care Wadsworth, E., Institute for Social Studies in Medical Care No information recorded Department of Health and Social Security UK Data Service 23 April 1993 ADVICEAGEAIDS (DISEASE)ALCOHOL USEATTITUDESBUILDING MAINTENANCECARE IN THE COMMUNITYCARE OF DEPENDANTSCLEANINGCLINICAL TESTS AND MEASUREMENTSCOMPLEMENTARY THERAPIESCOOKINGBEREAVEMENTDENTISTSDEPENDENCY RELATIONSHIPDISEASESDOCTOR-PATIENT RELATIONSHIPDRUG SIDE-EFFECTSDRUG USEECONOMIC ACTIVITYEMOTIONAL STATESEMPLOYMENT HISTORYEXERCISE (PHYSICAL ACTIVITY)FAMILIESFATHERSFATIGUE (PHYSIOLOGY)FINANCIAL RESOURCESFINANCIAL SUPPORTFRIENDSGENDERHEALTHHEALTH PROFESSIONALSHEALTH SERVICESHEALTH VISITORSHEALTH CONSULTATIONSHEARING IMPAIRMENTSHIV INFECTIONSHOLIDAYSHOME HELPHOME OWNERSHIPHOME VISITSHOMOSEXUALITYHOSPITALIZATIONHOSPITAL BED PROVISIONHOSPITAL DISCHARGESHOSPITAL SERVICESHOSPITAL VISITINGHOUSEHOLDSHOUSINGIMMORTALITYINTERPERSONAL COMMUNICATIONKNOWLEDGE (AWARENESS)LANDLORDSLIFE INSURANCEMEDICAL CAREMEDICAL CENTRESMEDICAL SPECIALISTSMEDICAL DIAGNOSISMEDICAL EXAMINATIONSMEDICAL HISTORYMEDICAL INFORMATION SYSTEMSMEDICAL PRACTICESMEDICAL PRESCRIPTIONSMOTHERSNAUSEANURSESHOSPITAL OUTPATIENT SERVICESPAINPATIENTSPEER-GROUP RELATIONSHIPSPHYSICIANSPREJUDICEPRIVATE SECTORPROFESSIONAL CONSULTATIONSRELIGIONRELIGIOUS AFFILIATIONRELIGIOUS PERSONNELRENTED ACCOMMODATIONRESIDENTIAL CARE OF THE SICKRESIDENTIAL MOBILITYRESPIRATORY SYSTEMRIGHT TO PRIVACYSATISFACTIONPARTNERSHIPS (PERSONAL)SHOPPINGSIBLINGSSMOKINGSOCIAL ACTIVITIES (LEISURE)SOCIAL HOUSINGSOCIAL INTERACTIONSOCIAL SECURITY BENEFITSSOCIAL SUPPORTSOCIAL WELFARESOCIAL WORKERSSOLICITORSSPECIALISTSSTRESS (PSYCHOLOGICAL)SYMPTOMSTERMINALLY ILLTIMETRAVELLING TIMEVISION IMPAIRMENTSVOLUNTARY ORGANIZATIONS Health care services and policies Abstract copyright UK Data Service and data collection copyright owner.The aims and objectives of this survey were to: Describe the experience of and attitudes towards the care of people with AIDS or related conditions; describe the social context in which requirements of health care are negotiated; look at the continuity of care between hospital and community; describe balance of care between professional and lay carers; describe views and perceptions of care of patients and formal and informal carers; examine process of obtaining care; examine balance of care between hospital and community; look at social consequences of care received.Main Topics: Methodological issues in research; care of pwas; needs for health and social care of pwas; receiving a positive HIV antibody test; use of general practitioner services; care from the home support team; role of informal carers; role of the voluntary sector; symptoms of AIDS and their relief. 1988 - 199001 January 198801 January 1990 England IndividualsSubnationalAIDS or HIV sufferersCarersHomosexualsPatients All homosexual (or bisexual) men attending the study hospital with AIDS or HIV infection on 1st October 1988, and any others who attended between then and June 1989 (pwas); Their informal carers and their key formal carers. Cross-sectional (one-time) study No sampling (total universe) Face-to-face interviewIdentification of pwas through interviews with professionals based at two hospitals and two wards of the hospital and through home support team (HST). Questionnaire interviews with pwas, and follow-up 6-9 months later. Questionnaire interviews with all formal and informal carers, and follow-up for informal carers if pwa died (all specific patients). Additional general questionnaire for formal carers (informal carers nominated by pwas). The Data Collection is available to UK Data Service registered users subject to the <a href="https://ukdataservice.ac.uk/app/uploads/cd137-enduserlicence.pdf" target="_blank">End User Licence Agreement</a>.Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you. See <restrctn> McCann, K. (1991) 'The experience of having a positive HIV antibody test', AIDS Care, 43-53 The experience of having a positive HIV antibody test McCann, K. (1990) 'Care in the community and by the community', AIDS Care, 421-424 Care in the community and by the community McCann, K. (1992) 'Attitudes towards and use of general practitioner services among homosexual men with HIV infection or AIDS', British Journal of General Practice, 107-110 Attitudes towards and use of general practitioner services among homosexual men with HIV infection or AIDS McCann, K. (1992) 'The role of informal carers in supporting gay men who have HIV related illness:: what do they do and what are their needs?', AIDS Care, 25-34 The role of informal carers in supporting gay men who have HIV related illness: McCann, K. (1991) 'The work of a specialist AIDS home support team :: the views and experiences of patients using the service', Journal of Advanced Nursing, 832–836 The work of a specialist AIDS home support team : McCann, K. (1992) 'The impact of receiving a positive HIV antibody test :: factors associated with response', Counselling Psychology Quarterly, 37-45 The impact of receiving a positive HIV antibody test : McCann, K. (1992) 'The voluntary sector, gay men and HIV/AIDS' in P. Aggleton, H. Hart and P. Davis (eds.), , London | Washington D.C.: Falmer Press. ISBN978-0750700399 The voluntary sector, gay men and HIV/AIDS https://oai.ukdataservice.ac.uk:8443/oai/provider 2987 2024-11-28T07:22:40Z ddi:codebook:2_5