2026-05-25T03:25:04Z https://datacatalogue.cessda.eu/oai-pmh/v0/oai

6250a9f94dfe20921dd84d54e60748906c773b78b80e3f5a1baf2634e64a81ee 2025-06-17T01:11:45Z language:enopenaire_data

Naastenspraak Naastenspraak doi:10.17026/SS/2KXHYThttps://covid19initiatives.health-ri.nl/p/Project/27866022694653532 H. Boeije 2024-03 https://api.crossref.org/funders/501100001826 DANS Data Station Social Sciences and Humanities 2024-12-13 INTELLECTUAL IMPAIRMENTCOVID-19INFORMAL CARESocial SciencesCOVID-19 measuresinformal carewellbeingintellectual disability During the corona pandemic, we examined four times how caregivers of people with an intellectual disability were doing. Topics included well-being, contacts, and care tasks. In this additional study, we ask the same caregivers to answer questions about four topics in their own words as much as possible. We examine whether caregivers (1) and their family members (2) have recovered and what effects they still experience from the corona measures. This knowledge contributes to improving crisis policy, aftercare in the event of crises and support for caregivers. We also examine if caregivers arrange future care (3) and whether they experience changes in the provision of information and participation by healthcare providers (4) after the pandemic. This knowledge contributes to issues of scarcity and cooperation with caregivers in care for people with disabilities. We will disseminate and discuss the results with caregivers, professionals, policy makers, healthcare providers and researchers. 2024-03-042024-03-30 survey data https://ssh.datastations.nl/oai doi:10.17026/SS/2KXHYT 2025-01-07T01:01:00Z ddi:codebook:2_5