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DDI2.5 XML CODEBOOK RECORD FOR STUDY NUMBER 393 Life Before Death, 1969 39310.5255/UKDA-SN-393-1 Anderson, J. L., Institute for Social Studies in Medical Care Hockey, L., Institute for Social Studies in Medical Care Cartwright, A., Institute for Social Studies in Medical Care No information recorded Department of Health and Social Security UK Data Service 11 May 1976 ACCIDENTSADVICEAGEAIDS FOR THE DISABLEDANXIETYATTITUDESBATHROOMSCANCERCARE IN THE COMMUNITYCARE OF DEPENDANTSCARE OF THE DISABLEDCARE OF THE ELDERLYCAUSES OF DEATHCHARITABLE ORGANIZATIONSCHEMOTHERAPYCHILDRENCLEANINGCOOKINGCOSTSDAY CAREBEREAVEMENTDEPRESSIONDISABLED PERSONSDISEASESDISTANCE MEASUREMENTDOMESTIC APPLIANCESDOMESTIC RESPONSIBILITIESDRUG USEEARLY RETIREMENTEMPLOYMENTFAMILY MEMBERSFINANCIAL SUPPORTFRIENDSGENDERGENERAL PRACTITIONERSHEALTHHEALTH PROFESSIONALSHEALTH SERVICESHEALTH VISITORSHEARING AIDSHEATING SYSTEMSHOME HELPHOME VISITSHOSPITALIZATIONHOSPITAL BED PROVISIONHOSPITAL DISCHARGESHOSPITAL SERVICESHOSPITAL VISITINGHOUSEHOLDSHOUSEWORKHOUSINGHOUSING FACILITIESINFORMATIONINFORMATION NEEDSINFORMATION SOURCESINTERPERSONAL COMMUNICATIONINTERPERSONAL RELATIONSKNOWLEDGE (AWARENESS)LAUNDRIESLAVATORIESMARITAL STATUSMEALS-ON-WHEELSMEDICAL CAREMEDICAL SPECIALISTSMEDICAL EXAMINATIONSMEDICAL INSTRUMENTSMEDICAL PRESCRIPTIONSMINISTERS OF RELIGIONMOTOR PROCESSESNURSESNURSING CAREHOSPITAL OUTPATIENT SERVICESPAINPAIN CONTROLPART-TIME EMPLOYMENTPATIENTSPERSONAL CONTACTPERSONAL HYGIENEPHYSICIANSPROFESSIONAL CONSULTATIONSQUALITY OF LIFERADIOTHERAPYRELIGIOUS AFFILIATIONRESIDENTIAL CARE OF THE ELDERLYRESIDENTIAL CARE OF THE SICKRESIDENTS OF INSTITUTIONSRETIREMENTROOM SHARINGSATISFACTIONSHELTERED HOUSINGSIBLINGSSICK PERSONSLONELINESSSOCIAL LIFESOCIAL SECURITY BENEFITSSOCIAL SUPPORTSOCIO-ECONOMIC STATUSSTAIRSSURGERYSYMPTOMSTERMINALLY ILLTRANSPORTTRAVELLING TIMEURINARY INCONTINENCEVISITS (PERSONAL)VOLUNTARY ORGANIZATIONSWHEELCHAIRS Morbidity and mortalityHealth care services and policies Abstract copyright UK Data Service and data collection copyright owner.To study the needs of the dying and the care they received. The survey is a description of the last year in the lives of 785 adults based mainly on the reports of close relatives. A further study, Life Before Death, 1987 is held at the Data Archive as Study No. 2985.Main Topics: Attitudinal/Behavioural Questions A) Questions asked of doctors Whether anticipated deaths should be allowed in the home, ease of admission into suitable National Health Service institutions for different types of patient, types of beds needed most, adequacy of consultation between respondent and hospital staff over admission to and discharge from hospital. Number of domiciliary consultations requested during last 12 months, number of nights on call per week for cases other than obstetrics, whether emergency services used/should be used for night calls. Helpfulness and adequacy of district nursing services for patients at home with terminal illnesses. Suggestions for other services which could be helpful. Whether relatives of patients in local area accept responsibility for care (reasons). Attitude to informing terminal patients of the nature of their illness, prescriptions or medical supervision given to bereaved. Direct access to hospital beds for terminally ill. B) Questions asked of person who registered patient's death. Whether death expected, whether patient bedridden before death (duration), whether capabilities restricted, age at death, place of death, length of time in hospital, date of last visit to practitioner, whether employed during last 12 months, home help needed and received near time of death. If respondent did not live in same house as deceased: distance away, cost of journey, frequency of visits to deceased in last 12 months, place of work, employment status, changes in work pattern/financial situation/other resulting from caring for deceased. Help received from official services, opinion on whether deceased was better off at home/in hospital, changes in lifestyle since death. C) Questions asked of domiciliary staff Respondents were asked to indicate, from a list, services in the area which were available/they had used/they would like extended or introduced. Amount of time respondent wanted to give to terminal cases, adequacy of contact with general practitioners/hospitals. Symptoms suffered by deceased in last 12 months, details of type of help needed, equipment had/needed, expenditure incurred, knowledge of organisations providing equipment for invalids, whether deceased was unconscious/able to recognise relatives before death, whether respondent was present at death. Help needed/wanted after death, religion, visits from GP/health officials since death. Worries/anxieties since death, relative seen most since death (distance away). Background Variables A) Doctors Type of practice, number of National Health Service patients, number of local authority or ancillary helpers available. B) Person who registered patient's death Relation to deceased or length of friendship, marital status of deceased, household members at time of death/hospitalization (age, sex, relation to deceased). Age, sex and marital status of respondent. C) Domiciliary Staff Age, sex, marital status, night duties. July 1969 - December 196901 July 196901 December 1969 England and Wales IndividualsNationalCarersGeneral practitionersMedical consultantsNursesPatientsTerminally ill Terminally ill adults in the last year of their lives in England and Wales, who died in 1969. Cross-sectional (one-time) study One-stage stratified or systematic random sample(by region and population size) Face-to-face interview The Data Collection is available to UK Data Service registered users subject to the <a href="https://ukdataservice.ac.uk/app/uploads/cd137-enduserlicence.pdf" target="_blank">End User Licence Agreement</a>.Commercial use of the data requires approval from the data owner or their nominee. The UK Data Service will contact you. See <restrctn> Cartwright, A. and Anderson, J. (1973) 'Help for the dying', New Society Help for the dying Anderson, J., Hockey, L. and Cartwright, A. (1973) Life before death, London: Routledge and Kegan Paul. Life before death https://oai.ukdataservice.ac.uk:8443/oai/provider 393 2024-11-28T07:23:50Z ddi:codebook:2_5