<?xml version="1.0" encoding="UTF-8"?>
<?xml-stylesheet type='text/xsl' href='/oai/static/oai2.xsl' ?><OAI-PMH xmlns="http://www.openarchives.org/OAI/2.0/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/ http://www.openarchives.org/OAI/2.0/OAI-PMH.xsd">
  <responseDate>2026-07-28T15:16:05Z</responseDate>
  <request identifier="36ec71599de4e60f8ef6dc2e90ba298baba488593a4cb3f5459c2b0501c7b993" metadataPrefix="oai_ddi25" verb="GetRecord">https://datacatalogue.cessda.eu/oai-pmh/v0/oai</request>
  <GetRecord>
    <record>
    <header>
      <identifier>36ec71599de4e60f8ef6dc2e90ba298baba488593a4cb3f5459c2b0501c7b993</identifier>
      <datestamp>2026-06-02T13:51:46Z</datestamp>
      <setSpec>language:en</setSpec><setSpec>openaire_data</setSpec>
    </header>
      <metadata>
        <codeBook xmlns="ddi:codebook:2_5" version="2.5" xsi:schemaLocation="ddi:codebook:2_5 http://www.ddialliance.org/Specification/DDI-Codebook/2.5/XMLSchema/codebook.xsd">
    <docDscr>
      <citation>
        <titlStmt>
          <titl xml:lang="en">The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 2, loneliness consequences supporting data, 2014</titl>
        </titlStmt>
        <prodStmt>
        </prodStmt>
      </citation>
    </docDscr>
  <stdyDscr>
    <citation>
      <titlStmt>
        <titl xml:lang="en">The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 2, loneliness consequences supporting data, 2014</titl>
        <IDNo xml:lang="en" agency="DOI">doi:10.7929/ISSDA/T9DCAC</IDNo><IDNo xml:lang="en" agency="ISSDA">0073-02</IDNo>
      </titlStmt>
      <rspStmt>
        <AuthEnty affiliation="Trinity College Dublin (TCD)" xml:lang="en">IDS-TILDA
        </AuthEnty>
      </rspStmt>
      <prodStmt>
        <prodDate xml:lang="en"/>
        <grantNo agency="Health Research Board (HRB)" xml:lang="en">IDS-TILDA-2015-1</grantNo>
      </prodStmt>
      <distStmt>
        <distrbtr xml:lang="en">ISSDA</distrbtr><distrbtr abbr="ISSDA" xml:lang="en">Irish Social Science Data Archive</distrbtr>
        <distDate xml:lang="en" date="2025-07-22">2021</distDate>
      </distStmt>
      <verStmt>
      </verStmt>
      <holdings xml:lang="en" URI="https://doi.org/10.7929/ISSDA/T9DCAC"/>
    </citation>
    <stdyInfo>
      <subject>
        <keyword xml:lang="en" vocab="none">Social Sciences</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Ageing</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Health</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Mental health</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Intellectual impairment</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Loneliness</keyword><keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/">Social integration</keyword><keyword xml:lang="en" vocab="none">Social inclusion</keyword>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?v=4.2.2&amp;lang=en">General health and well-being</topcClas><topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?v=4.2.2&amp;lang=en">Elderly</topcClas><topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?v=4.2.2&amp;lang=en">Equality, inequality and social exclusion</topcClas>
      </subject>
      <abstract xml:lang="en">The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with an intellectual disability with the general ageing population. The underpinning values of IDS-TILDA are inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to contribute to the lives of people with intellectual disability.&lt;br&gt; &lt;br&gt; The objectives of IDS-TILDA are:&lt;br&gt; &lt;ul&gt; &lt;li&gt; to understand the health characteristics of people ageing with an intellectual disability;&lt;/li&gt; &lt;li&gt;to examine the service needs and health service utilization of people ageing with an intellectual disability;&lt;/li&gt; &lt;li&gt;to identify disparities in the health status of adults with an intellectual disability as compared to The Irish Longitudinal Study on Ageing’s (TILDA) findings for the general population; and&lt;/li&gt; &lt;li&gt;to support evidence-informed policies, practices and evaluation.&lt;/li&gt; &lt;/ul&gt; This research looks at the consequences of loneliness in terms of physical and psychological reactions and coping mechanisms through the five pathway social-environmental model to investigate the consequences of loneliness.  The article sought to answer the questions: how do older people with an ID physically react to loneliness?; and do lonely people with an ID demonstrate the use of specific coping mechanisms?&lt;br&gt; In adherence with the principals of open science (Health Research Board 2021, Trinity College Dublin, 2020) this data has been deposited to support the submission of a paper deposited with the HRB on 16th October 2021 titled “An exploration of the consequences of, and coping with loneliness in an ageing intellectual disability population” by Dr Andrew Wormald, Professor Mary McCarron and Professor Philip McCallion. &lt;br&gt; This data is extracted from the second wave of the IDS-TILDA study and utilises variables from different sections of the dataset. The data has been anonymized to prevent reverse engineering of the data and the information has been combined so that in cross tabulations of the data no less than 20 participants appear in any cell.</abstract>
      <sumDscr>
        <collDate xml:lang="en" date="2013-05" event="start">2013-05</collDate><collDate xml:lang="en" date="2014-03" event="end">2014-03</collDate>
        <nation xml:lang="en">Ireland</nation>
        <anlyUnit xml:lang="en">Individual<concept/></anlyUnit>
        <universe xml:lang="en" clusion="I">Individuals with Intellectual Disability aged 40 years and older in the Republic of Ireland. A nationally representative sample was taken.</universe>
        <dataKind xml:lang="en">Survey data</dataKind>
      </sumDscr>
    </stdyInfo>
    <method>
      <dataColl>
        <timeMeth xml:lang="en">Longitudinal: Cohort/Event-based<concept/></timeMeth>
        <sampProc xml:lang="en">Probability: Simple random.&lt;br&gt; An original nationally representative sample of 753 adults with an intellectual disability aged 40 years and over in the Republic of Ireland was randomly drawn for Wave 1 of IDS-TILDA. The National Intellectual Disability Database (NIDD) provided the sampling frame for recruitment, with support of the Health Research Board (HRB).&lt;br&gt;  Wave 2 recruited 708 participants from the original study and remained largely representative of the NIDD; 317 of these participants completed the UCLA loneliness scale.<concept/></sampProc>
        <collMode xml:lang="en">Face-to-face interview: CAPI/CAMI<concept/></collMode>
      </dataColl>
    </method>
    <dataAccs>
      <useStmt>
        <restrctn xml:lang="en">ISSDA may only supply data for use in the EEA and adequacy decision countries.</restrctn>
        <citReq xml:lang="en">The data and its creators shall be cited in all publications and presentations for which the data have been used. The data citation may be in the form on the dataset page or in the form required by the publication.&lt;br&gt;
Any work based in whole or part on resources provided by ISSDA, should acknowledge: "The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 2, loneliness consequences supporting data, 2014" and also ISSDA, in the following way: “Accessed via the Irish Social Science Data Archive - www.ucd.ie/issda”.</citReq>
      </useStmt>
    </dataAccs>
    <othrStdyMat>
      <relPubl xml:lang="en">
        <citation>
          <titlStmt>
            <titl xml:lang="en">Wormald, A. D., McCallion, P., &amp; McCarron, M. (2019). The antecedents of loneliness in older people with an intellectual disability. Research in developmental disabilities, 85, 116-130.</titl>
            <IDNo xml:lang="en" agency="doi">10.1016/j.ridd.2018.11.009.</IDNo>
          </titlStmt>
          <distStmt>
            <distDate xml:lang="en"/>
          </distStmt>
        </citation><citation>
          <titlStmt>
            <titl xml:lang="en">Wormald A, McCallion P, McCarron M. An exploration of the consequences of, and coping with loneliness in an ageing intellectual disability population. HRB Open Res. 2022 Jul 5;5:2.</titl>
            <IDNo xml:lang="en" agency="doi">10.12688/hrbopenres.13452.2.</IDNo>
          </titlStmt>
          <distStmt>
            <distDate xml:lang="en"/>
          </distStmt>
        </citation>
      </relPubl>
    </othrStdyMat>
  </stdyDscr>
  <fileDscr>
  </fileDscr>
</codeBook>
      </metadata>
      <about>
        <provenance xmlns="http://www.openarchives.org/OAI/2.0/provenance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/provenance http://www.openarchives.org/OAI/2.0/provenance.xsd">
    <originDescription harvestDate="2026-06-02T13:51:46Z" altered="true">
      <baseURL>https://issda.ucd.ie/oai</baseURL>
      <identifier>doi:10.7929/ISSDA/T9DCAC</identifier>
      <datestamp>2025-12-11T02:00:00Z</datestamp>
      <metadataNamespace>ddi:codebook:2_5</metadataNamespace>
    </originDescription>
</provenance>
      </about>
    </record>
  </GetRecord>
</OAI-PMH>